ELNEC Celebrates its 10th Anniversary

Schedule of 2011 Courses

Record-Breaking Regional ELNEC Courses Held in 2010

Bringing Patient and Family Centered Care to the Intensive Care Unit

ELNEC Trainers Announced as Award Winners

Resources for ELNEC Trainers

ELNEC International Update

At ELNEC's 10th Anniversary
Left to right—Pam Malloy, MN, RN, FPCN, ELNEC Project Director at AACN; Brenda Fischer, PhD, RN, MBA, CPHQ, Director at the Center for Nursing Excellence at Palomar Pomerado Health; Sally Brosz Hardin, PhD, RN, FAAN, Dean and Professor at the Hahn Schol of Nursing and Health Science at the University of San Diego; and Betty Ferrell, PhD, RN, FAAN, Principal Investigator of ELNEC, City of Hope
Record-Breaking Regional ELNEC Courses Held in 2010
ELNEC trainers from across the US held many courses in 2010. Data received from notification forms sent to the National ELNEC Project Office in 2010 indicated that 123 regional courses were provided with over 2,210 people trained, representing 33 states. An average of 18 participants attended each reported course. 
If you are planning to hold an ELNEC course in 2011, please fill-out the notification form and return it electronically to the ELNEC Project Office per the instructions. This allows us to keep track of courses being held and is information that is critical to potential ELNEC funders. After sending in the notification form, you will receive a template of a certificate of completion that you can give to each participant who attends all modules. In addition, if you would like to have your course date/location placed on the ELNEC website, the Project Office is happy to do that free of charge. Thank you to everyone who planned, organized, promoted, and provided an ELNEC course in 2010.

The patient and family centered care committee team members at the Medical Intensive Care Unit at the University of Pennsylvania Hospital
ELNEC Trainer Has Book Published
ELNEC Trainer, C. Andrew Martin, MSN, RN, CHPN, has written a book titled Reflections of a Loving Partner:  Caregiving at the End of Life.  The book started as a collection of Andrew’s personal essays, written as part of his grief process.  The purpose of the book is to raise hospice awareness and to encourage others who may find themselves in the role of caregiver.  “…an honest, tender, true story of
love’s triumph over tragedy…a memoir that is at once historic and timeless,” states Dr. Ira Byock, author of Dying Well and The Four Things That Matter Most.  This book may be ordered here.

3rd Annual Spirituality and Health Care Summer Institute to be Held in July, 2011
Interprofessional spiritual care—the assessment, diagnosis, and treatment of patients’ spiritual needs in the context of their physical and emotional needs—is the focus of the 3rd annual Spirituality and Health Care Summer Institute sponsored by the George Washington Institute for Spirituality and Health (GWish). Developed for healthcare professionals of all disciplines, chaplains, educators, administrators, and others who work with patients and their families, the Institute focuses on practice development as well as implementation of the interprofessional spiritual care model in both inpatient and outpatient clinical settings.  This institute will be held July 25-29 at the George Washington University, Washington, DC. Click here for further information.

ELNEC and Credentials
From time-to-time, we receive emails from people who list their ELNEC training as a credential.  For example:
“Susie Smith, RN, MSN, ELNEC Certified.”  
Remember that ELNEC is not a certification program. You are considered an ELNEC trainer, and may state so on your resume, but you are not a “certified” ELNEC trainer.  If you have an interest in being certified in palliative care, you can do this through the National Board for Certification of Hospice and Palliative Nurses (NBCHPN).  For more information on taking the certification exam, click here.
Do you have questions or further information about ELNEC? If so, visit ELNEC online and/or contact Pam Malloy.
Dr. Gavivann Veerakrul at the ELNEC-Pediatric Palliative Care workshop in Thailand
Let Us Hear From You!
We are interested in your thoughts and suggestions about end-of-life nursing issues. What would you like to see in this newsletter? Do you have a story to share about how end-of-life nursing education has made a difference for your patients and their families? Please forward your suggestions or comments to:
Pam Malloy
ELNEC Project Director
202-463-6930 X238
The End-of-Life Nursing Education Consortium is pleased to bring you the Winter 2011 issue of ELNEC Connections, a quarterly newsletter to showcase efforts in end-of-life nursing education and practice. This newsletter spotlights project developments and provides resources that may be useful to you as an ELNEC trainer. ELNEC is a national education program to improve end-of-life care by nurses. The project, which began in February 2000, was funded by a major grant from The Robert Wood Johnson Foundation. Additional funding has been received from the National Cancer and Open Society Institutes; the Aetna, Archstone, Oncology Nursing, and California Healthcare Foundations; and the Department of Veterans Affairs. 
ELNEC is administered through a partnership between the American Association of Colleges of Nursing (AACN) and the City of Hope (COH).
ELNEC Celebrates 10th Anniversary of Training Nurses and Other Healthcare Professionals
Largest National Training Course To Date
On January 13 & 14, over 350 nurses, physicians, social workers, and chaplains, representing 35 states and 4 international countries came to the University of San Diego (USD) to attend the 82nd national End-of-Life Nursing Education Consortium (ELNEC) train-the-trainer course and to celebrate ten years of ELNEC training. AACN and the City of Hope used this occasion to mark ten years of collaboration in developing curricula and providing national and international train-the-trainer courses for over 12,250 nurses and other members of the interdisciplinary health team. Supported by the USD Hahn School of Nursing and Health Science, Palomar Pomerado Health (PPH) in San Diego and the National ELNEC Project Team, nurses and other members of the interdisciplinary team were trained to work with patients across the life-span, from neonates to geriatrics, and to learn how to change institutional systems in an effort to improve care. Participants came from acute care facilities, hospices, long-term care/skilled nursing homes, homecare, clinics, and schools of nursing. These participants returned to their institutions, prepared to train other healthcare providers in excellent palliative care.
Nine ELNEC Trainers Announced as Award Winners for 2010-2011
At the end of 2010, nine ELNEC trainers were selected as award winners for 2010-2011. The winners were chosen for their commitment in providing excellent palliative care, education, and research. Each has a unique story. This year’s award winners include:
  • Michele Gaguski, MSN, RN, AOCN, CHPN, APN-C:  Clinical Director of Medical Oncology and Infusion Services, Atlanticare Cancer Care Institute, Egg Harbor, NJ.
  • Andrew Martin, MSN, RN, CHPN: Quality Assurance and Performance Improvement Coordinator, Beacon Hospice, Charlestown, MA and adjunct faculty at Saint Joseph’s College of Maine.
  • Sarah McSpadden, BSN, RN, MPH: Director of Quality Assurance and Performance Improvement, Silverado Hospice, Irvine, CA.
ELNEC-Pediatric Palliative Care:
  • Garry Pea, MBA: Manager of Education for Hope HealthCare Services, Ft. Myers, FL.
ELNEC-Critical Care:
  • Lisa Preston, BSN, RN: Works in the Medical Cardiology Intermediate Care Unit at Brigham and Women's Hospital in Boston, MA.
  • Jacqueline MacNeil, MSN, RN, CCRN: Works in the Medical Intensive Care Unit at Brigham and Women’s Hospital in Boston, MA.
  • Nanci McLeskey, MCG, MDiv, RN-BC, FNGNA: Geriatric nurse educator at the University of Utah School of Medicine and adjunct faculty member of the College of Nursing, University of Utah, Salt Lake City, UT.
  • Lores Vlaminck, BSN, RN, MA, CHPN: Principal and Owner of Lores Consulting, Rochester, MN.
  • Hyun Sook Kim, PhD, MSN, RN, MSW: Associate Professor at Chungju National University, Department of Social Welfare in Jeungpyeong-gun, Chungbuk, Republic of Korea.
  • Joyce Marete, KRCHN, DIPHEd: Nurse at Laikipia Palliative Care Centre in Nanyuki, Kenya.
To learn more about these award winners, visit
Schedule of 2011 Courses
ELNEC-For Veterans: 
March 7 & 8 - Ft. Lauderdale, FL
June 2 & 3 - Dallas, TX
Funding is available through the Department of Veterans Affairs to those who work in VA facilities.
ELNEC-Pediatric Palliative Care: 
April 29 & 30 - Indianapolis, IN
Co-sponsored by Clarian North Medical Center and the National ELNEC Project.
June 16 & 17 - Denver, CO
July 28 & 29 - Atlanta, GA
October 11 & 12 - Boston, MA
All three courses are co-sponsored by the Hospice and Palliative Nurses Association (HPNA) and the National ELNEC Project.
ELNEC-Critical Care and ELNEC-Core: 
August 4 & 5 - St. Louis, MO
Both courses are co-sponsored by the University of Missouri-St. Louis College of Nursing and the National ELNEC Project.
February 21-23 - Ibadan, Oyo State, Nigeria
April 4-8 - Salzburg, Austria
Please note five other courses in Eastern Europe are being planned for 2011. Specifically in the Czech Republic, Hungary, Poland, Romania, and Russia. Courses in the Ukraine and Kazakistan will occur in May and June, respectively. A course will be held in Belize in November.

Bringing Patient and Family Centered Care to the Medical Intensive Care Unit
The Medical Intensive Care Unit (MICU) at the Hospital of the University of Pennsylvania sees over 1600 patients a year. Patients can be in the unit for days to months. ELNEC trainer, Robin McClelland, MSN, RN, CCRP reports that in 2009, the MICU formed a patient and family centered care committee. Over the last year the committee has created and sent out bereavement cards to the families of patients. Contact information for bereavement support is being provided. The MICU created a “Let Me Introduce Myself” board to assist the staff in learning more about their patients. “The board includes information about their friends and family, what they are proud of, what their favorite things are, what makes them happy and what stresses them out,” states Robin. There is also space for pictures to be hung on the board. This information has been very helpful in caring for patients.
In addition, Robin and her team have provided comfort carts for patients and their families. The comfort cart provides the following items; a Bible, Quran, Jewish Prayers, a battery operated candle, CD player with soothing CDs, Kleenex, prayer blankets, stickers, crayons and coloring books for children, information about the dying process and what to expect, as well as contact information for grief counseling. Lastly, when the patient transitions to comfort care, a sign of a sunset is placed outside of the room so that staff knows that the goals of care have changed. “Our next project is to create Guidelines for Family Presence During Resuscitation and End of Life Guidelines,” states Robin. If you would like to contact Robin about these various projects, email her at
ELNEC International
ELNEC Presented in the Country of Georgia
On December 7-9, 2010, 35 nurses from various regions throughout the country of Georgia attended ELNEC-International in Tbilisi, the capital of Georgia. The venue was at the Tbilisi State University International School of Economics. Participants were from the following institutions: Oncology Prevention Centre, Transfiguration Convent Mercy Center, Palliative Care Service of the National Cancer Centre of Georgia, the Home Care Team of Georgian National Association for Palliative Care, and nurses from the Adjara region and Patriarchate of Georgia. One nurse represented the Georgian Nurses Association. The faculty team included: Nessa Coyle PhD, RN, FAAN, Patrick Coyne MSN, FAAN, FPCN, and Carol Long PhD, RN, FPCN. Not only did the faculty have the opportunity to teach ELNEC-International to Georgian nurses, but they also were able to visit with key people who are moving palliative care forward in Georgia.  For example, they met the Founder and Coordinator of the Palliative Care National Program and National Centre of Oncology. They also visited with the General Director of the National Cancer Center and the Head of Palliative Care Services at the National Cancer Center. The faculty also toured the Transfiguration Convent—Mercy Center Hospice and met three patients and several nursing staff while meeting with the facility physician over tea. The 3-day course ended with the presentation of the ELNEC-International certificate of completion and ELNEC pin to each of the participants.
ELNEC-Pediatric Palliative Care Goes to Thailand
In November of 2010, the Pediatric Nurses Society of Thailand and the Wishing Well Foundation hosted a 3-day ELNEC-Pediatric Palliative Care workshop. The course was coordinated and presented by Nancy King, MSN, RN, CPNP, a Pediatric ELNEC trainer from The Butterfly Program at The Children’s Hospital in Aurora, CO. There were 152 nurses from across Thailand who attended the conference. The module content was adapted as necessary to incorporate Thai culture and medical and nursing practices. The third day of the conference was dedicated to exploring models of excellence and the presentations describing palliative care initiatives in the US, Bangkok and Khon Kaen were well-received.  “The dedication of the nurses and physicians to palliative care in Thailand and their innovation and creativity in providing services in some very challenging environments was truly inspirational. It was a very exciting and energizing event,” stated Nancy. The conference participants were active in sharing their experiences and ideas during the conference and had many questions and comments. There was general consensus and enthusiasm that the course was a valuable asset to their practices and enhanced their knowledge and comfort in providing care for the dying child.  The conference was funded by a grant from the 'My Child Matters' project of the Union International Cancer Control (UICC) to the Wishing Well Foundation. Nancy especially wants to acknowledge the assistance of Dr. Issarang Nuchprayoon, Director and Secretary General of the Wishing Well Foundation, for spearheading the fundraising and promoting the conference  and Associate Professor Dr. Rashanee Seeda, president of the Pediatric Nurses Society of Thailand, and her conference planning team for their excellent work in preparing for this very successful event. If you would like further information about this international opportunity, contact Nancy at