Welcome to the Fall 2013 Edition!
The End-of-Life Nursing Education Consortium (ELNEC) is pleased to bring you this issue of ELNEC Connections, a quarterly newsletter to showcase efforts in end-of-life nursing education and practice. This newsletter spotlights project developments and provides resources that may be useful to you as an ELNEC trainer. ELNEC is a national education program to improve end-of-life care by nurses.Today, over 17,000 nurses and other healthcare providers have attended a national train-the-trainer course. ELNEC has been presented in 77 countries and translated into 6 languages. The project, which began in February 2000, was funded by a major grant from the Robert Wood Johnson Foundation. Additional funding has been received from the National Cancer and Open Society Institutes, US Department of Veterans Affairs, Milbank Foundation for Rehabilitation and the Aetna, Archstone, Oncology Nursing, Bristol-Myers Squibb, Cambia Health, and California Healthcare Foundations. ELNEC is administered through a partnership between the American Association of Colleges of Nursing (AACN) and the City of Hope (COH). 
In this edition, read about:
  • 2014 National ELNEC Train-the-Trainer Courses
  • Integrating Palliative Care into Doctor of Nursing Practice (DNP) Curriculum and Clinical Practice
  • AACN Provides $20,000 to Expand ELNEC-International
  • New Interprofessional Pain Competencies Available
  • New International Opportunities
  • At A Glance:  Opportunities and Resources

“LIKE” ELNEC on Facebook
We are working to get 1,000 “likes” on the ELNEC Facebook page. Once we get to 1,000, a drawing of all the people who have “liked” ELNEC will take place, and two winners will be chosen for FREE registration to any future national ELNEC train-the-trainer course

Check out the ELNEC Facebook page at www.facebook.com/ELNECpalliativecareeducation
2014 ELNEC Courses Being Planned World Wide
Integrating Palliative  Oncology Care into
Doctor of Nursing Practice (DNP) Education and Clinical Practice

(Funded by NCI)
February 27-28 - Glendale, CA

ELNEC Summit*

April 10-11 - Dallas, TX


May 7-8 - Durham, NC
June 18-19 - St. Paul, MN

Integrating Palliative Oncology Care into
Doctor of Nursing Practice (DNP) Education and Clinical Practice
(Funded by NCI)

June 26-27 - Washington, DC

July 29-30 - Chicago, IL

ELNEC-Pediatric Palliative Care**

July 29-30 - Chicago, IL


August 21-22 - Portland, OR

Pre-Conference to the International Conference on Cancer Nursing (ICCN)

September 7 - Panama City, Panama
ELNEC-Core** October 21-22 - Orlando FL

*ELNEC Summit provides 4 ELNEC train-the-trainer courses simultaneously (ELNEC-Core, Pediatric Palliative Care, Critical Care, and Geriatric).
**ELNEC Courses held in partnership with the Hospice and Palliative Nurses Association (HPNA).
For more information and/or to register, go to www.aacn.nche.edu/ELNEC
Three or more attendees from the same institution will receive a $50 reduction in the registration fee per participant. 
First DNP Palliative Care Course Funded by the National Cancer Institute Coming in February 2014 Train-the-Trainer Course
On April 1, 2013, City of Hope Medical Center, in partnership with the American Association of Colleges of Nursing (AACN) received a 5-year grant for the purpose of educating DNP faculty and clinicians in palliative care.  The project, titled Integrating Palliative Oncology Care Into Doctor of Nursing Practice (DNP) Education and Clinical Practice, will provide education to these future nursing leaders, as care for those with cancer continues to be complex and financially burdensome. Participants will receive resources to assist in integrating palliative care content into DNP program curricula and to prepare DNP graduates in providing evidence-based palliative care in a variety of oncology settings. This program is built around the 2013 National Consensus Project’s (NCP) Clinical Practice Guidelines for Quality Palliative Care, the 2013 Institute of Medicine (IOM) Report titled Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis, and the AACN Essentials of DNP Education. The primary aims will be achieved through four national workshops for DNP educators and graduates from colleges and universities throughout the United States.  The first course will be held February 27 & 28, 2014 in Glendale, CA.  The application, overview, agenda, and press release are located at www.aacn.nche.edu/ELNEC.  Deadline to apply for the February 2014 course is December 2, 2013. A second course will be held in June 26 & 27, 2014 in Washington, DC.
AACN Provides $20,000 to Expand the Work of ELNEC-International
ELNEC Trainers Asked to Match This Gift
At AACN's Fall Semiannual Meeting, the Board of Directors agreed to provide $20,000 to the ELNEC Project in an effort to expand the project's international work.  “We are grateful to the AACN for this generous gift and we are asking ELNEC trainers to match this donation, so we can double the work so desperately needed in other parts of the world,” stated Betty Ferrell, PhD, RN, MA, FAAN, FPCN, and Principal Investigator of the ELNEC Project.   Currently ELNEC has been presented in six of the seven continents—educating and consulting with educators, health administrators, community leaders, and ministers of health, for the sole purpose of improving the care of those dying in their countries.  We estimate that over 6,250 nurses, physicians, social workers, chaplains, etc have received ELNEC training in 77 various countries around the world.
In 2014, we have several requests to hold ELNEC-International courses. Funding for this project is dependent on grants and philanthropic gifts provided by ELNEC faculty and trainers. Examples of needs:
#1:  Panama—Pre-conference at the 2014 International Conference for Cancer Nurses (ICCN), to be held in September in Panama City, Panama.
#2:  India/Liberia/Bangladesh—Work with an ELNEC trainer who lives in these countries.
#3:  Belize—Further education needed, as the first in-patient hospice opened in this country in October 2013.
#4:  Kenya—Work with nursing faculty in developing palliative care curriculum in schools of nursing.
#5:  Miscellaneous—Provide registration fees for people to come to the US for ELNEC training, send ELNEC CDs to nurses and physicians in other countries who need this education, and update the Spanish and Russian translations of ELNEC-International.
If you would like to make a year-end tax-deductible gift to the ELNEC-International fund, please fill-out the donation form at www.aacn.nche.edu/ELNEC
Pain Management Competency Program is Underway
Addresses Interprofessional Core Competencies
Pain is a complex health issue that has significant human and economic costs. There has been momentum to strengthen pain care across health professions; however, there is no agreement on the basic core competencies each clinician should possess to effectively manage pain. The Interprofessional Pain Management Competency Program sought to address this issue by identifying core competencies in pain management for prelicensure clinical education that can serve as a framework in the development of comprehensive and effective pain care management curricula. In an article published in the June issue of Pain Medicine, “Core Competencies for Pain Management: Results of an Interprofessional Consensus Summit,” University of California, Davis experts Drs. Scott Fishman and Heather M. Young, along with a team of international experts representing various health professions, identify the desired skills and knowledge new health professionals must possess to best care for people with pain. These educational outcomes, known as core competencies, serve as a framework for the development of comprehensive pain management curricula for early learners in the health professions.  For more information, go to http://www.ucdmc.ucdavis.edu/paineducation/

ELNEC Presented in Albania and Germany With New Translations Available in Each Country
In September 2013, two ELNEC-International courses were held using new language translations to enhance training.  Thirty-five nurses and three physicians attended the week-long ELNEC train-the-trainer course in Albania.  This was the first ELNEC course held in this country.   Nessa Coyle, Patrick Coyne, Judy Paice, and Tom Smith served as faculty for this course. (Picture on left is of Albanian participants)
In addition, a 2-day ELNEC-International train-the-trainer course was held in Freiburg, Germany, with 11 leaders from across Germany in attendance.  They came from various clinical settings with the purpose of training others throughout Germany, Switzerland, and Austria.  Silke Walter and Bea Werner led the effort to translate both ELNEC-International and ELNEC-Geriatric. (Picture on right is from Germany)
Two additional ELNEC-International courses in 2013 will be held in November in Kazakhstan and Thailand. 
Former National ELNEC Faculty Member Writes Book About Her Personal Experience With Cancer
As a healthy, happy thirty-nine-year-old mother with no family history of breast cancer, being diagnosed with the disease rocked Hollye Jacobs’s world. Having worked as a nurse, social worker, and child development specialist for fifteen years, she suddenly found herself in the position of moving into the hospital bed. She was trained as a clinician to heal. In her role as patient, the healing process became personal. The Silver Lining is both Hollye’s memoir and a practical, supportive resource for anyone whose life has been touched by breast cancer. In the first section of each chapter, she describes with humor and wisdom her personal experience and gives details about her diagnosis, treatment, side effects, and recovery. The second section of each chapter is told from Hollye’s point of view as a medical expert. In addition to providing a glossary of important terms and resources, she addresses the physical and emotional aspects of treatment, highlights what patients can expect, and provides action steps.  Recently, Hollye was on the CBS Early Morning Show, talking about her journey and the book.       
For more information about this wonderful book and/or to pre-order your book(s) for friends and patients, visit Amazon.Com and Barnes & Noble.
Did You Know?
In the first 10 months of this year, the ELNEC Project Office has received 203 notification forms from ELNEC trainers, detailing upcoming ELNEC courses they are hosting. These courses have been/will be held in 36 states, plus 6 countries (e.g. Germany, Albania, Saudi Arabia, Japan, Philippines, and Singapore). The types of ELNEC trainings offered included: 68%=Core, 14%=Pediatric Palliative Care, 7%=Veterans, 6%=Critical Care, and 5%=Geriatric. 
If you are planning to provide an ELNEC course, you must notify the ELNEC Project Office by submitting a notification form. To obtain this form and to review other resources on how to plan an ELNEC course, go to http://www.aacn.nche.edu/elnec/planning-elnec-course.
Any questions?  Contact Pam Malloy at pmalloy@aacn.nche.edu
At a Glance: Opportunities and Resources
Under the principal direction of Drs. Elaine Wittenberg-Lyles and Joy Goldsmith, and an External Advisory Board, the Clinical Communication Collaborative (CCC) is dedicated to the advancement of palliative care by fostering clinical communication practices for healthcare professionals. Their goal is to support clinicians and educators through communication training, education, and research that meets the changing demands of healthcare systems and addresses the needs of patients with cancer and other serious illnesses.  (www.clinicalcc.com)
Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis
Institute of Medicine Report (IOM) Formulates Recommendations for Improving Care
In the United States, approximately 14 million people have had cancer and more than 1.6 million new cases are diagnosed each year. By 2022, it is projected that there will be 18 million cancer survivors and, by 2030, cancer incidence is expected to rise to 2.3 million new diagnoses per year. However, more than a decade after the IOM first studied the quality of cancer care, the barriers to achieving excellent care for all cancer patients remain daunting. Therefore, the IOM convened a committee of experts to examine the quality of cancer care in the United States and formulate recommendations for improvement. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis presents the committee’s findings and recommendations.  For more information, click here.
The Hospice and Palliative Nurses Association Seeking Information on Ethically-Challenging Clinical Issues
The Hospice and Palliative Nurses Association (HPNA) recently initiated an online forum for membership discussion on the topic of bioethics.  HPNA is interested in the ethically challenging situations practitioners in this specialty face and invite ELNEC educators who have not yet completed this HPNA survey to do so now.  It should take less than 5 minutes of your time and will be helpful to us in designing future educational services.  Please access the survey via this link: http://www.surveymonkey.com/s/TN28TZP
Dignity Therapy Workshop to be Held in Manitoba in 2014
Workshop to be led by Dr. Harvey Max Chochinov
The Manitoba Palliative Care Research Unit is presenting a 2 1/2 day Dignity Therapy training workshop with Harvey Max Chochinov, MD on May 28-30, 2014 in Winnipeg, Manitoba. The ultimate goal of Dignity Therapy is to help bolster the dignity of dying patients, and address their suffering. This workshop will prepare you to use Dignity Therapy with your end-of-life patients. For further information and/or to register, go to https://workshops.dignityincare.ca/
The American Society for Parenteral and Enteral Nutrition
Advancing the Science and Practice of Nutrition
The American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.) is dedicated to improving patient care by advancing the science and practice of clinical nutrition and metabolism. Founded in 1976, A.S.P.E.N. is an interdisciplinary organization whose members are involved in the provision of clinical nutrition therapies, including parenteral and enteral nutrition. With more than 5,500 members from around the world, A.S.P.E.N. is a community of dietitians, nurses, pharmacists, physicians, scientists, students and other health professionals from every facet of nutrition support clinical practice, research and education.   http://www.nutritioncare.org/
We are interested in your thoughts and suggestions about end-of-life nursing issues. What would you like to see in this newsletter? Do you have a story to share about how end-of-life nursing education has made a difference for your patients and their families?
Please forward your suggestions or comments to:

Pam Malloy
ELNEC Project Director
202-463-6930 ext. 238
End-of-Life Nursing Education Consortium (ELNEC)