Welcome to the Summer 2013 Edition!
The End-of-Life Nursing Education Consortium (ELNEC) is pleased to bring you this issue of ELNEC Connections, a quarterly newsletter to showcase efforts in end-of-life nursing education and practice. This newsletter spotlights project developments and provides resources that may be useful to you as an ELNEC trainer. ELNEC is a national education program to improve end-of-life care by nurses.Today, over 16,000 nurses and other healthcare providers have attended a national train-the-trainer course. ELNEC has been presented in 77 countries and translated into 6 languages. The project, which began in February 2000, was funded by a major grant from the Robert Wood Johnson Foundation. Additional funding has been received from the National Cancer and Open Society Institutes, US Department of Veterans Affairs, Milbank Foundation for Rehabilitation and the Aetna, Archstone, Oncology Nursing, Bristol-Myers Squibb, Cambia Health, and California Healthcare Foundations. ELNEC is administered through a partnership between the American Association of Colleges of Nursing (AACN) and the City of Hope (COH). 
In this edition, read about:
  • 2013 National ELNEC Train-the-Trainer Courses
  • 2014 ELNEC Courses Being Planned World-Wide
  • Applications Available for New National Cancer Institute Funded Course for DNP Educators
  • Community Outreach through ELNEC-Pediatric Care Course 
  • ELNEC Trainer and National Faculty Member Selected for Major Leadership Program
  • Conference Planned to Honor Marcia Grant's Career in Promoting Nursing Research
  • New ELNEC-Critical Care Article
  • Marathon in Kenya Will Bring Attention to World Hospice Day
  • Two ELNEC Courses Held in Singapore and Saudi Arabia
  • National ELNEC Office Seeks Funds to Promote International Palliative Care Education
  • Looking for New Videos to Update Your Teaching Methods?
  • Survey Available to Assist Researchers
  • Two ELNEC Pins Available

“LIKE” ELNEC on Facebook
We are working to get 1,000 “likes” on the ELNEC Facebook page. Once we get to 1,000, a drawing of all the people who have “liked” ELNEC will take place and two winners will be chosen for FREE registration to any future national ELNEC train-the-trainer course

Check out the ELNEC Facebook page at www.facebook.com/ELNECpalliativecareeducation
Three National ELNEC Train-the-Trainer Courses to be Held in 2013
ELNEC-Core*          October 8-9, Lake Buena Vista (Orlando), FL
ELNEC-APRN November 5-6, Washington, DC
ELNEC-Critical Care November 5-6, Washington, DC
*Cosponsored by ELNEC and the Hospice and Palliative Nurses Association (HPNA) 
Note: Three or more attendees from the same institution will receive a $50 reduction in the registration fee per participant for all 2013 courses.
For more information and/or to register, go to www.aacn.nche.edu/ELNEC
2014 ELNEC Courses Being Planned World-Wide
Integrating Palliative  Oncology Care into
Doctor of Nursing Practice (DNP) Education and Clinical Practice

(Funded by NCI)
February 27-28 - Glendale, CA

ELNEC Summit*

Dates TBD - Dallas, TX


Dates TBD - Durham, NC

Integrating Palliative Oncology Care into
Doctor of Nursing Practice (DNP) Education and Clinical Practice
(Funded by NCI)

Dates TBD - Washington, DC


August 21-22 - Portland, OR

Pre-Conference to the International Conference on Cancer Nursing (ICCN)

September 7 - Panama City, Panama

NOTE:  Four other national courses will be held in partnership between the National ELNEC Project and the Hospice and Palliative Nurses Association (HPNA).  Dates and locations will be announced soon.

*ELNEC Summit provides 4 ELNEC train-the-trainer courses simultaneously (ELNEC-Core, Pediatric Palliative Care, Critical Care, and Geriatric).
Applications for the DNP project are available now at www.aacn.nche.edu/ELNEC
Registration forms for other courses will be available by October 15, 2013.
First Doctor of Nursing Practice (DNP) Education and Clinical Practice Course on Palliative Care to be Provided Through National Cancer Institute Grant
On April 1, 2013, City of Hope Medical Center, in partnership with the American Association of Colleges of Nursing (AACN), received a 5-year grant titled, Integrating Palliative Oncology Care Into Doctor of Nursing Practice (DNP) Education and Clinical Practice. The overall purpose of this national training program is to educate and provide resources to DNP program faculty on integrating evidence-based palliative care content into program curricula and to prepare DNP graduates on providing evidence-based palliative care in a variety of oncology settings. This program is built around the 2013 National Consensus Project’s (NCP) Clinical Practice Guidelines for Quality Palliative Care and the AACN Essentials of Doctoral Education for Advanced Nursing Practice. The primary aims will be achieved through four national workshops for DNP educators and graduates from colleges and universities throughout the United States.  The first course will be held February 27 & 28, 2014 in Glendale, CA. The second course will be held in Washington, DC, dates to be determined.  The application, overview, agenda, and press release are located at www.aacn.nche.edu/ELNEC.  Deadline to apply for the February 2014 course is December 2, 2013.  
ELNEC-Pediatric Palliative Care Course Provided to Maternal-Child Inpatient Nursing Staff at University of Kansas Medical Center
Community Outreach Provided by Statewide Dissemination
The University of Kansas Medical Center (KUMC) includes a Pediatric Department and a Maternal Child program that may be small in terms of patient numbers, but is proving that they are mighty when it comes to quality patient care. In 2007, Kathy Davis, PhD, director of the pediatric palliative care program at KUMC, attended an ELNEC-Pediatric Palliative Care (PPC)  train-the-trainer course, knowing that this training was the answer to ensuring that nursing staff in maternal/child units at KUMC had the best possible training to provide palliative care to children and families.  Since her training, Kathy has provided ELNEC-PPC training  three times, and has encouraged all maternal/child nurses and community nurses  to take advantage of the training. The results are impressive – nearly 100% of the pediatric and pediatric ICU nurses have received ELNEC training, and many of the neonatal ICU and labor and delivery nurses have followed suit.  Now, Mother Baby, the Emergency Department, and the Burn Unit are being invited to this fall’s course.  Today, KUMC’s Maternal Child Division is home to a robust Pediatric Palliative Care Committee, which meets monthly to address barriers to pediatric palliative care both in the hospital and after the child’s discharge; to ensure that children and parents have a strong voice in end-of-life decision making; to plan and offer celebrations of the lives of the children and families for whom they have cared; and much more.  In addition, Davis has spearheaded the development of a statewide pediatric palliative care coalition.  Free standing hospice and palliative care agencies around the state are working collaboratively to ensure that palliative and hospice services are available to all children in the state who are in need of such services and that families also receive compassionate bereavement care.  This fall, agencies from around the state of Kansas will participate in ELNEC training via interactive televideo connections. Currently, many of these nurses do not have pediatric training, and agencies cannot afford to send many, if any, nurses to ELNEC courses to which they must travel. So, ELNEC will travel to the rural areas of the state!  Congratulations to KUMC Maternal/Child units and a Pediatric Department on a program that may be small, but certainly is mighty!  Kathy may be reached at KDAVIS2@kumc.edu
ELNEC Trainer and National Faculty Member is Selected as a Fellow for Major Leadership Program
Cheryl Ann Thaxton, MN, RN, CPNP-PC, CHPPN, ELNEC-Pediatric Palliative Care trainer and co-leader of the national ELNEC-Pediatric APRN project, has been selected as a Fellow for the Duke-Johnson & Johnson (J&J) Nurse Leadership Program’s 2013-2014 inaugural year. The Duke-J&J Nurse Leadership Program, a one-year certificate program, is a partnership between Duke University Schools of Medicine and Nursing and J&J. The program has been created to provide an innovative leadership development learning experience for the advanced practice nurse. Fellows will participate in three leadership retreats throughout the year as well as distance-based learning activities and a leadership project of their choice. The program aims to provide Fellows with the leadership and management skills required to effectively address the needs of underserved populations and to become change agents within their practice settings and the ever-changing health care environment. Congratulations, Cheryl! Cheryl can be contacted at cheryl.thaxton@duke.edu

Conference Planned to Honor Marcia Grant's Distinguished Career in Promoting Nursing Research
Interdisciplinary Conference Will Also Celebrate Centennial Anniversary of City of Hope
On October 29, 2013, an interdisciplinary conference sponsored by the Division of Nursing Research and Education at the City of Hope will be held to honor the impressive career of Marcia Grant, DNSc, RN, FAAN.  Dr. Grant has been appointed as Distinguished Professor at City of Hope.  In addition, a celebration of the centennial anniversary of the City of Hope will take place. Noted Researchers, Ruth McCorkle, PhD, RN, FAAN; Barbara Given, PhD, RN, FAAN; Robert Krouse, MD, FACS; and Geri Padilla, PhD, will present their work related to quality of life, cancer care, and caregivers.  The event will be held in Monrovia, CA (suburb of Los Angeles) at the Marriott Courtyard Hotel.  If you would like to send Dr. Grant a note to be included in a special book that is being created in her honor, please send it electronically to Denice Economou at DEconomou@coh.org   For more information on this event, click here.
New Article About ELNEC-Critical Care Published
In the spring of 2013, a new article on the clinical outcomes and efforts of ELNEC-Critical Care was published in the American Association of Critical Care Nurses Advances in Critical Care. The article, titled "End-of-Life Care Education in Acute and Critical Care: The California ELNEC Project,” presents data from ELNEC-Critical Care courses funded by the Archstone Foundation from 2007-2010. Data from these courses, representing 388 participants, showcased the many efforts of critical care nurses across the state of California, as they provided more than 2900 ELNEC classes to their interdisciplinary colleagues, as well as revised policies and procedures in their intensive care, coronary care, burn units, and in emergency departments. Many led in  instituting significant system changes so better care could be provided to those with serious, life-threatening illnesses. The ELNEC/Archstone program promoted not only acute and critical care nurses' palliative care education and practice, but also served as a model for future educational endeavors. The reference for this article is: Grant M., Wiencek, C., Virani, R., Uman, G., Munevar, C., Malloy, P., & Ferrell, B.  (2013). End-of-life care education in acute and critical care: the California ELNEC project. Advances in Critical Care, 24(2), 121-129.
NOTE: One final 2013 national ELNEC-Critical Care train-the-trainer course will be held November 5-6, in Washington, DC. The registration form is located at www.aacn.nche.edu/ELNEC. A national ELNEC-Critical Care train-the-trainer course will be held in 2014 in Dallas, TX. 

Pictured above are most of the authors:  Bottom row (left to right)—Marian Grant and Clareen Wiencek. Top row (left to right)—Pam Malloy, Betty Ferrell, Rose Virani.                                                                         
Marathon in Kenya Will Bring Attention to World Hospice Day
The first national marathon sponsored by Kimbilio Hospice, in Kipkaren, Kenya, will take place on October 13, 2013, with the run beginning and ending at Kimbilio. The marathon, which will feature world-renown runners throughout Kenya, will be held in conjunction with the celebration of World Hospice Day and will honor the lives and memory of those who have been guests at Kimbilio Hospice.  Proceeds from the marathon will go towards the expenses needed to continue the daily operations of the hospice. If you would be interested in running in this marathon and/or financially supporting Kimbilio Hospice, go to www.livingroominternational.org  for further information.

Two ELNEC Courses Held Internationally Reach New Regions
Palliative Care is Expanding in Singapore and Saudi Arabia
In July, 25 nurses from throughout Singapore attended the first ELNEC-Core train-the-trainer course at Dover Park Hospice. Because of the success of the first course, a second ELNEC-Core course will be provided in October 2013. Photo on the left shows those who attended the three-day course, which was organized by Chin Soh Mun.
In 2012, Ingrid Porter, MSc, RN, AOCN, travelled from Saudi Arabia to the US to attend an ELNEC train-the-trainer course.  Since her return, she has taught almost 100 nurses and has had opportunities to introduce palliative care to her colleagues at Saudi Aramco Medical Services Organization (SAMSO). To date, she has shared information about palliative care and its importance with over 430 physicians, hospital administrators, and other healthcare professionals. Because there are no nursing homes or hospices, and home health care is still in its infancy in Saudi Arabia, palliative care is beginning in the hospitals. While Ingrid was at King Fahad Specialist Hospital in Dammam, Saudi Arabia, serving as the Director of Oncology for over three years, she began a palliative care unit with 10 beds. Today, that unit has more than doubled its size.  In addition, a palliative care consult team sees patients throughout the entire hospital.
For more information on palliative care in Saudi Arabia, contact Ingrid at ingrid.porter@aramco.com.

National ELNEC Project Office Seeking Funds to Promote International Palliative Care Education
Every year, the national ELNEC project office receives requests to provide palliative care education in various parts of the world. Many of these requests come from countries where there is very little, if any palliative care (i.e. Cameroon, Bangladesh, Liberia, etc). Over the past eight years, the ELNEC project has received funding from the Open Society Institute to educate hundreds of nurses in Eastern Europe. The Bristol-Myers Squibb Foundation has also provided funds to further support the work in Eastern Europe. The Oncology Nursing Foundation provided funds to teach a 5-day ELNEC train-the-trainer course in Tanzania to over 50 nurses and other healthcare professionals throughout the country. Many ELNEC trainers have provided funds to support the international work in the past. The needs are monumental, but funding is scarce. The ELNEC project office has been invited to consider providing this education in several countries next year (i.e. Panama, Belize, Kenya, etc), but there is a critical need for further support. Suggested ways your tax-deductible gifts will be used:
  • Provide free registration to bring nursing leaders/educators to US-based ELNEC courses and to assist with travel expenses, if needed
  • Send an interdisciplinary team to a country to provide a 5-day ELNEC train-the-trainer course and to meet with leaders in the country to promote palliative care
  • Assist ELNEC trainers who will be leading a team to a country with poor resources
  • Send ELNEC-International CD-Roms to countries who need this education
If you are looking for a way to assist financially in providing ELNEC training to various parts of the world, please fill-out the form located at www.aacn.nche.edu/ELNEC 

Looking for New Videos to Update Your Teaching Methods?
Showing just the right video when teaching an ELNEC module can do wonders in promoting your presentation. Below are a few that we have found to be helpful. These are all found on You Tube, so they are free to you.

Survey Available to Assist Researchers in Exploring the Role of Collaboration in Palliative Care
Are you interested in improving palliative care? Researchers at California State University Long Beach would like to invite you to participate in a survey to explore the role of collaboration on the quality of palliative care. Participants may choose to take part in a raffle for a variety of prizes. Feel free to pass this email onto others interested in palliative care!
Please follow the link to www.tinyurl.com/Palliative-Care-IDT

Two ELNEC Pins Available
Two ELNEC pins are now available to ELNEC trainers worldwide. Many individuals purchase these pins to give to new trainers at their institution after they have completed an ELNEC training or train-the-trainer course. The purple pin is 1” x 2” ($10/each) and the green pin is ½” x 1 ¼” ($5/each).  Price includes shipping/handling. To order these pins, complete the order form at www.aacn.nche.edu/ELNEC.  Pins will be shipped only for orders of 10 or more (for every 10 pins you purchase, you receive 1 FREE).

Did You Know?
In the first 7 months of this year, the ELNEC Project Office has received 151 notification forms from ELNEC trainers, detailing upcoming ELNEC courses they are hosting. These courses have been/will be held in 32 states, plus Germany, Saudi Arabia, Japan, and Singapore. 

 If you are planning to provide an ELNEC course, you must notify the ELNEC Project Office by submitting a notification form. To obtain this form and to review other resources on how to plan an ELNEC course, go to http://www.aacn.nche.edu/elnec/planning-elnec-courseAny questions?  Contact Pam Malloy at pmalloy@aacn.nche.edu  
Remember, you should not be providing ELNEC courses with a CD older than 3 years (2010 or older). If you have completed an ELNEC train-the-trainer course and need to purchase the 2013 ELNEC CD, contact Pam Malloy at pmalloy@aacn.nche.edu. There have been substantial updates to the 2013 editions of ELNEC-Core, Pediatric Palliative Care, Critical Care, and Geriatric courses. Updated ELNEC CDs are only sold to those who have attended an ELNEC train-the-trainer course.   

We are interested in your thoughts and suggestions about end-of-life nursing issues. What would you like to see in this newsletter? Do you have a story to share about how end-of-life nursing education has made a difference for your patients and their families?
Please forward your suggestions or comments to:

Pam Malloy
ELNEC Project Director
202-463-6930 ext. 238
End-of-Life Nursing Education Consortium (ELNEC)