Final  2011
National ELNEC Course

  2012 Schedule: 
Celebrate ELNEC's 100th Course in LA

  What’s New
with ELNEC-Core?

  ELNEC Receives Grant from California HealthCare Foundation
  Critical Care Curriculum for VA Facilities
  Joint Commission Provides Palliative
Care Certification

  “Tea Time” to
Support Staff

  ELNEC Translated
into German

  Palliative Care
Work in Romania

  Updates on
Work in Kenya

  Much More...
ELNEC is now on Facebook

Join Friends and
Colleagues in this Interactive Venue
Check out the brand new ELNEC Facebook page that lists the latest information about ELNEC. Interact with other ELNEC trainers.
The Joint Commission Now Certifies Palliative Care Programs

The Joint Commission’s new Advanced Certification Program for Palliative Care, which became available on September 1, 2011, is designed to recognize hospital inpatient programs that demonstrate exceptional patient and family-centered care in order to optimize the quality of life for patients with serious illness. For more information, click here.
Palliative Care Related to Disasters
Is anyone doing research or other work related to end-of-life care during disasters? If so, please contact Lois Robley at  
If you are planning to hold an ELNEC training or train-the-trainer course, be sure to send in the notification form located here.
A Poem by an ELNEC-Pediatric Palliative Care Trainer
Pediatric Code Blue ER” came over the intercom.
“Oh No,” was the voice in my heart.Tiny little 3 month old, looks like a doll on that big cot.  No, response. Stop! I hear the Doctor say. Parents are on the way, Oh dear.I am told “the mom is in the family room.” I walk in; mom has a look of terror blended with tears on her face. “Where is my baby?”  “How is my baby?”
I hear myself say, “The Dr. will be in to talk with you.” “Is my baby alive?”   She searches my face, peers into my eyes, for Answers she does not want to hear. “No, I can’t lie to you,” I hear myself say. I go to her, wrap my arms around her,
The cries of a grieving mother tear at my soul. “What happened?”  “I should not have gone back to work.” It is not your fault, there is no blame are the thoughts I kept to myself. No words are going to console. Just presence.  Just being. Police show up, “you can’t be alone with the baby,”  I hear him tell the parents.
More police show up, the coroner, questions, investigations. Isn’t it enough that the parent’s baby has died, but all of these questions as well? Tears fall from tired eyes, aching hearts, as they hold their lifeless little one.
“We need an autopsy, she needs to go to Bismarck, and we need to take her now!” Baby is taken from the father’s arms into the arms of a nurse who too is crying. Parents leave with an empty car seat, broken hearts, and empty arms. How does one make it through this?  With the help of others and a God who loves and cares for them.
By: Juli Caron, CSJ
Let Us Hear From You!
We are interested in your thoughts and suggestions about end-of-life nursing issues. What would you like to see in this newsletter? Do you have a story to share about how end-of-life nursing education has made a difference for your patients and their families? Please forward your suggestions or comments to:
Pam Malloy
ELNEC Project Director
202-463-6930 X238
Welcome to the Summer 2011 Edition!
The End-of-Life Nursing Education Consortium is pleased to bring you the Summer 2011 issue of ELNEC Connections, a quarterly newsletter to showcase efforts in end-of-life nursing education and practice. This newsletter spotlights project developments and provides resources that may be useful to you as an ELNEC trainer.  ELNEC is a national education program to improve end-of-life care by nurses. Today, over 12,350 nurses and other healthcare providers have attended a national train-the-trainer course. ELNEC has been presented in 70 international countries. The project, which began in February 2000, was funded by a major grant from The Robert Wood Johnson Foundation. Additional funding has been received from the National Cancer and Open Society Institutes, and Aetna, Archstone, Oncology Nursing, Bristol-Myers Squibb, and California Healthcare Foundations, and the US Department of Veterans Affairs. 
ELNEC is administered through a partnership between the American Association of Colleges of Nursing (AACN) and the
City of Hope (COH).
Final 2011 National ELNEC Course
ELNEC-Core Train-the-Trainer Course: 
October 11 and 12; Boston, MA 
This course will be held in partnership with the Hospice and Palliative Nurses Association (HPNA) and the National ELNEC Project Team. 
For more information, go to
2012 ELNEC Schedule Announced
Highlights include Three ELNEC Summits and 100th Course Celebration
On January 26 and 27, 2012, the 100th national/international ELNEC train-the-trainer course will be held in Los Angeles, CA. This will be a wonderful opportunity to celebrate ELNEC’s milestone birthday in January and to network with others from across the US and countries around the world. If you are already an ELNEC trainer and would like to take a refresher course or attend another specialty course, feel free to attend this course. Nurses and other healthcare team members are invited to attend this special ELNEC summit where ELNEC-Core, Pediatric Palliative Care, Geriatric, and Critical Care train-the-trainer courses will be held simultaneously. 
Two other ELNEC Summits will be held in 2012:  August 23 and 24 in Washington, DC and October 11 and 12 in Portland, OR. Room will be available if you would like to provide a poster, highlighting your work in palliative care over these past 10 years.  If you are interested in showcasing a poster at any of these three summits, please contact Pam Malloy at For more information and/or to register for the Los Angeles or Washington, DC events, go to
Each participant who attends with two (2) or more additional people from their institution will receive a $50 discount off the registration per attendee. This price reduction is provided to encourage people to come with colleagues from their institution, as there is a better chance of implementing the practices promoted during the course and disseminating the educational content.
National ELNEC-Core Course Offered as a
Pre-Conference to AACN’s Master’s Education Conference
For nursing  faculty who will be attending the AACN Master’s Conference, there will be an ELNEC-Core train-the-trainer course, held at the Marriott Rivercenter Hotel in San Antonio, TX, February 29-March 1, 2012. Non-nursing faculty may attend and you do not have to register for the Master’s Education Conference in order to participate in this ELNEC course. For more information and/or to register, go to
What’s New with ELNEC-Core?
ELNEC-Core Is Undergoing a Change for 2012
Many ELNEC trainers have reported to the national ELNEC Project Office that it is becoming more difficult to provide a 1 ½ - 2 day ELNEC training course at their facility. Many struggle to hold even a one-day course, due to poor staffing and lack of educational funds. Yet, to hold a one-day course means rushing through each of the 8 modules in the 8-hours delegated. With this in mind, the 2012 edition of ELNEC-Core will have two modules, Culture and Ethical Considerations, embedded into the remaining six modules (Introduction to Palliative Nursing Care, Pain Management, Symptom Management, Communication, Loss/Grief/Bereavement, and Final Hours). This will allow more time for each of the 6 modules, and yet still be able to review concepts within the Culture and Ethical Considerations modules. Please note that these two modules will still be made available in hard copy and on the CD-Rom, for those who want to review 8 modules. Remember, each of the ELNEC curricula (ELNEC-Core, ELNEC-Pediatric Palliative Care, ELNEC-Geriatric, ELNEC-Critical Care, ELNEC-For Veterans, and ELNEC-International) are updated annually. Trainers should not be teaching from a curriculum that was printed in 2007 or earlier. CDs reflecting the new edits for 2012 will be available on February 1, 2012 to ELNEC trainers only. To order/purchase a new ELNEC CD, contact Pam Malloy at
ELNEC Receives Grant From California HealthCare Foundation
Goal is to Improve Palliative Care Among Public Hospitals
In California (CA) and across the country, nurses play a vital role in the delivery of healthcare. As the largest segment of the health care workforce, 300,000 nurses work in CA and over 190,000 practice in hospitals, mostly caring for patients with complex medical problems. The California HealthCare Foundation (CHCF) has funded 16 public hospitals across CA for the past few years to assist in developing palliative care programs in these institutions, which generally have few resources. For the next 18 months, representatives from these 16 hospitals will attend an ELNEC course and receive a 2-year subscription to the Hospice Education Network (HEN), where staff can receive ELNEC-For Public Hospital training. Monthly conference calls will also be held to further mentor the leaders within each of these 16 hospitals, encourage their progress, build leadership, review barriers to care and lessons learned, and promote palliative care throughout each institution through education, policy/institutional change, and development of programs to sustain palliative care.
Critical Care Curriculum to be Developed
for VA Facilities
In 2010, the ELNEC Project received funding from Veteran’s Affairs (VA) to provide 6 national train-the-trainer courses for those working in VA facilities across the United States. To date, four courses have been held with over 525 nurses and other members of the healthcare team attending these courses. Recently, VA has requested that the final two courses, to be held in 2012, be aimed at educating nurses in the critical care arena. A new curriculum will be developed to meet this request. In addition, the original ELNEC-For Veterans curriculum will be taught, simultaneously, for those nurses who do not work in critical care arenas. Plans are underway for securing the dates and sites of the two 2012 courses, which will be announced on the ELNEC website by October 1, 2011.
“Tea Time” To Support Staff
In April 2011, a national ELNEC-Pediatric Palliative Care train-the-trainer course was held at Riley Children’s Hospital in Carmel, IN. While attending this course, participants had an opportunity to participate in a tradition that staff at Riley Children’s have—“tea time.” Five staff from the Janet Weis Children’s Hospital
(JWCH) at Geisinger Medical Center in Danville, PA, attended the national ELNEC course at Riley Children’s and were impressed with “tea time” and the opportunity it gave for staff and families to share. Sevasty Chamberis, RN, Bonnie Kowalski, RN, Barry Rohrer, Child Life Specialist, Kelly Hammaker, RN, and Mary Tiffin, Spiritual Care Social Worker held the first “tea time” at JWCH in July, with approximately 25 nurses, physicians, pharmacists, care management staff, and transporters in attendance. This event served as a support group for staff to learn about and discuss issues such as compassion, caregiver fatigue, and moral distress. Starbuck’s Coffee sponsored the first tea time, by donating an assortment of coffees, teas, and pastries. For more information, contact Mary Tiffin, at

In photo (from left to right): Mary Tiffin, Sevasty Chamberis,Bonnie Kowalski, Barry Rohrer, and Kelly Hammaker
ELNEC Translated into German
Gerhild Becker, MD, teaches staff and cares for patients at Freiburg University in Germany. Dr. Becker has a vision of improving care for those with life-limiting illnesses in German-speaking countries. She knows that will not happen unless staff receives more education. Two years ago, after receiving funding, Dr. Becker contacted the national ELNEC Project Office to explore opportunities to collaborate on a curriculum that would provide palliative care education and yet be sensitive to the specific and unique cultural needs of those living in Germany and other surrounding countries who speak German. She and her staff, have taken the ELNEC-International curriculum and developed it to meet the needs described above. In June, two of the translators, Bea Werner and Silke Walter, attended the national ELNEC-Core train-the-trainer course in Denver, CO. The purpose of the trip was to meet with members of the national ELNEC Project Team and faculty, and to participate in a “live” course. Now that the curriculum has been translated, both Bea and Silke are planning a pilot course for a few staff, before taking it nationally. This is the fifth language that ELNEC has been translated into. The other four are: Spanish, Russian, Japanese, and Korean.
In photo (from left to right): Bea Werner and Silke Walter
Palliative Care Work in Romania: Partnership with School of Nursing
Julie Vosit-Steller, DNP, FNP-BC, AOCN, has been an ELNEC trainer for many years. She has been dedicated to embedding ELNEC throughout the various courses she teaches at Simmons College, but she also has a passion working with nursing leaders in Romania to improve palliative care. For the past several  summers, Julie and her team have worked in Bucharest and Brasov, Romania, teaching and mentoring nurses. In June 2011, the team went to Hospice Casa Sperantei and their affiliate sites.  They had opportunities to meet with the hospice nurses, in which they had been privileged to be collaborators and mentors to in the past. Yet, this year, Julie and her team were excited to see these Romanian nurses becoming ELNEC trainers and teaching within their organizations, communities, and universities. Some of the highlights of their June visit included: (1) Two collaborative Palliative Care Conferences in Bucharest and Brasov. (2) Collaborative presentation was the goal between the groups with translation provided, both written and oral. Data collection for several doctoral research projects was accomplished during the visit, with the focus on end-of-life issues and evaluation of the collaborative efforts of the project and  transition/translation of research into practice. (3) A reception was hosted at the American Embassy for the members of the Hospice team, Romanian press and other supporters.The American Ambassador, Mark Gitenstein and his wife Libby, have been very supportive of the hospice staff and their efforts in Bucharest and remain engaged on several levels. Our strong relationship has provided growth experiences for all involved in the mentoring/collaborative process, students and educators, as well. Modeling such a program in areas of high need of support and expansion will likely serve as the next direction for our group. For more information on this project, contact Julie at
Updates on Work in Kenya
Community Health Care Facility Partners with Organization in Kenya to Promote Palliative Care Services, Nursing Education, Care of Orphans
Visiting Nurse and Hospice Care (VNHC) of Santa Barbara, CA has partnered with Viagenco Comprehensive Care in Mbita, Kenya to assist Viagenco fund primary care and home  palliative/hospice services to those who so desperately need this care. In addition, friends of VNHC sponsor 150 HIV/AIDS orphans to attend primary and secondary school. VNHC has started a nursing scholarship to be given to one female student per year. This pays for a 3 year diploma course in nursing. The goal is to promote nursing and to empower these young women in a society where they have less opportunity than men. On completion of their nursing education, they will return to work at Viagenco. Jen Amondi has been the nurse’s aide at the clinic since its opening six years ago.  She would like to train in Community Health and Development. This would enable her to work with Viagenco on community education, epidemiology and the eradication of common diseases such as malaria, typhoid, and HIV. The nurses from Santa Barbara who have been to Kenya admire Jen’s intelligence and potential nursing skills. “It is a privilege to help support and work with these dedicated individuals,” stated Susan Gibson, RN, FNP-BC, ACHPN, who has been to Viagenco and seen first-hand this amazing work. If you would be interested in donating to Jen’s education, contact Susan at
End-of-Life Nursing Education Consortium (ELNEC)