Welcome to the Spring 2013 Edition!
The End-of-Life Nursing Education Consortium (ELNEC) is pleased to bring you this issue of ELNEC Connections, a quarterly newsletter to showcase efforts in end-of-life nursing education and practice. This newsletter spotlights project developments and provides resources that may be useful to you as an ELNEC trainer. ELNEC is a national education program to improve end-of-life care by nurses.Today, over 15,400 nurses and other healthcare providers have attended a national train-the-trainer course. ELNEC has been presented in 77 countries and translated into 6 languages. The project, which began in February 2000, was funded by a major grant from the Robert Wood Johnson Foundation. Additional funding has been received from the National Cancer and Open Society Institutes, and Aetna, Archstone, Oncology Nursing, Bristol-Myers Squibb, Milbank for Rehabilitation, Cambia Health, and California Healthcare Foundations, and the US Department of Veterans Affairs. ELNEC is administered through a partnership between the American Association of Colleges of Nursing (AACN) and the City of Hope (COH). 
In this edition, read about:
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Six National ELNEC Train-the-Trainer Courses to be Held in 2013
ELNEC-Core*    May 14-15, St. Louis, MO
ELNEC-Core* July 30-31, Boston, MA
ELNEC-Pediatric Palliative Care*      July 30-31, Boston, MA
ELNEC-Core* October 8-9, Lake Buena Vista (Orlando), FL
ELNEC-APRN November 5-6, Washington, DC
ELNEC-Critical Care November 5-6, Washington, DC
*Cosponsored by ELNEC and the Hospice and Palliative Nurses Association (HPNA) 
Note: Three or more attendees from the same institution will receive a $50 reduction in the registration fee per participant for all 2013 courses.
For more information and/or to register, go to www.aacn.nche.edu/ELNEC
City of Hope, in Partnership with AACN, Receives National Cancer Institute Grant to Integrate Palliative Oncology Care Into Doctor of Nursing Practice Education and Clinical Practice
On April 1, 2013, the City of Hope Medical Center, in partnership with AACN, received a 5-year grant titled, Integrating Palliative Oncology Care Into Doctor of Nursing Practice (DNP) Education and Clinical Practice. The overall purpose of this national training program is to educate and provide resources to DNP program faculty to embed evidence-based palliative care content into DNP program curricula and to prepare DNP graduates in providing evidence-based palliative care in oncology. This program is built around the 2013 National Consensus Project’s Clinical Practice Guidelines for Quality Palliative Care and AACN's DNP Essentials. The primary aims will be achieved through four national workshops for DNP educators and graduates from colleges and universities throughout the United States. The first two courses will be held in 2014. Stay tuned to the ELNEC website for more information. To view the overview, agenda, and press release, go to www.aacn.nche.edu/ELNEC.
First National ELNEC-APRN Course Held in Anaheim, CA
115 APRNs Attended With the Goal of Improving and Maintaining Palliative Care Leadership, Practice, Education, and Research
There are many palliative care teams across the US being led by advanced practice registered nurses (APRNs). These APRNs are key team members and exemplify commitment to their varied roles in not only leadership, but practice, education, and research, too. There were 115 APRNs from 26 states who attended this first course. Participants could attend one of two tracks—adult- or pediatric-focused care. A second national course will be held November 5-6, 2013 in Washington, DC. Further information about this course, including, the registration form, overview, agenda, faculty listing, flyer, and FAQ are available at www.aacn.nche.edu/ELNEC.   
ELNEC-Geriatric Faculty Member, Carol Long, Honored at Marquette University
  Carol Olson Long, PhD, RN, FPCN was honored with the Distinguished Alumna of the Year Award from Marquette University’s College of Nursing and Alumni Association in a ceremony on Friday, April 26. Carol is an internationally recognized expert and consultant on geriatric and palliative care in community and long-term care settings. She specializes in research and education related to care for patients with advanced dementia. 
Carol has written numerous articles, book chapters, and abstracts on a variety of healthcare matters related to gerontology, end-of-life care, pain and dementia care in hospice, home health, and long-term care settings. In addition, Carol has held many ELNEC courses throughout the world, especially in Southeast Asia. In December 2012, Carol presented ELNEC at the Community Gerontological Nursing course, conducted by Hua Mei Training Academy, an initiative of the Tsao Foundation in Singapore. Twenty-two registered nurses attended this training. Carol is co-director of the Palliative Care for Advanced Dementia program at Beatitudes Campus in Phoenix, AZ and an adjunct faculty member at Arizona State University’s College of Nursing and Health Innovation. Congratulations Carol!
Three ELNEC-International Trainers Receive Awards for Promoting Palliative Care Worldwide
Pictured from left to right: Sayaka Takenouchi and
Hyun Sook Kim
  The International Journal of Palliative Nursing (IJPN) provides awards annually to nurses who promote worldwide education, multidisciplinary care, and excellent palliative care.  In March 2013, three ELNEC-International trainers received prestigious awards at a gala held in London.  Professor Hyun Sook Kim, PhD, RN from the Department of Social Welfare, Korea National University of Transportation, Republic of Korea received the Educator of the Year award for her vision and implementation of ELNEC-International and ELNEC-Pediatric Palliative Care throughout South Korea.  Sayaka Takenouchi, PhD, RN from Kyoto University Graduate School of Medicine/School of Human Health Science and the Japanese Society for Palliative Medicine, received second place for Development of Programs.  
Irena Laska is a nurse at the Mary Potter Hospice in Korce, Albania and received the Palliative Care Nurse of the Year award. Irena has worked under very difficult circumstances to develop a community-based home and day care center for cancer patients. The center also provides a regional training program for health professionals in palliative care principles and practices. Irena has also founded the Palliative Care Association in Korce. For more information about these awards and to see pictures of the beautiful ceremony, go to http://awards.ijpn.co.uk/2013-results.  
Irena Laska

ELNEC Trainer Has Begun to Develop the Texas/ELNEC Coalition
Purpose is to Improve Palliative Care in Texas
Connecticut, Delaware, and New Jersey have organized ELNEC trainers in their state to hold palliative care conferences and/or to promote ELNEC training. The second largest state in the Union is now in the process of developing a Texas/ELNEC Coalition, under the leadership of Debbie James, from MD Anderson in Houston. If you live in Texas and would like to join Debbie and many other Texas trainers, contact her at debbiejames53@yahoo.com.
Two ELNEC Pins Available
Two ELNEC pins are now available to ELNEC trainers worldwide. Many individuals purchase these pins to give to new trainers at their institution after they have completed an ELNEC training or train-the-trainer course. The purple pin is 1” x 2” ($10/each) and the green pin is ½” x 1 ¼” ($5/each).  Price includes shipping/handling. To order these pins, complete the order form at www.aacn.nche.edu/ELNEC.  Pins will be shipped only for orders of 10 or more (for every 10 pins you purchase, you receive 1 FREE).

Did You Know?
In the first 4 ½ months of this year, the ELNEC Project Office has received 97 notification forms from ELNEC trainers, detailing upcoming ELNEC courses they are hosting. These courses have been/will be held in 24 states, plus Germany, Saudi Arabia, and Singapore. 

 If you are planning to provide an ELNEC course, you must notify the ELNEC Project Office by submitting a notification form. To obtain this form and to review other resources on how to plan an ELNEC course, go to http://www.aacn.nche.edu/elnec/planning-elnec-courseAny questions?  Contact Pam Malloy at pmalloy@aacn.nche.edu  
Remember, you should not be providing ELNEC courses with a CD older than 3 years (2010 or older). If you have completed an ELNEC train-the-trainer course and need to purchase the 2013 ELNEC CD, contact Pam Malloy at pmalloy@aacn.nche.edu. There have been substantial updates to the 2013 editions of ELNEC-Core, Pediatric Palliative Care, Critical Care, and Geriatric courses. Updated ELNEC CDs are only sold to those who have attended an ELNEC train-the-trainer course.   

At a Glance: Future Opportunities and New Resources

Hospice Palliative Nurses Foundation (HPNF) offers scholarships and grants up to $15,000 and they are awarded annually. Proposals are due on or before June 1, 2013. For more information,  click here.

The International Palliative Care Network Conference - The 2013 conference will be hosted online on the Palliative Care Network Community Site. Participation and access to the virtual conference is FREE! Palliative Care professionals from all disciplines and regions of the world are encouraged to participate in presenting lectures and posters. For more details, click here
Hospice Foundation of America (HFA) will be premiering the 20th edition of the Living with Grief® educational series. Improving Care for Veterans Facing Illness and Death examines the issues, challenges, and solutions to help provide quality care to this growing population of Veterans.  This series will be available April 17, 2013.  For further information, http://www.hospicefoundation.org/veterans-promo.
  The Hospice Education Network (HEN) has a new and improved website. Check it out at http://www.hospiceonline.com/You will find many ELNEC courses listed in the course catalog.

Kenya is known for producing the world’s fastest runners.  On October 13, 2013 many of them will gather in the rural village of Kipkaren to run a marathon in celebration of World Hospice and Palliative Care Day. The run will begin and end at Kimbilio Hospice and will honor the lives and the memory of many patients who have found solace there. The Kiswahili word Kimbilio, when literally translated, means “a place to run to.” For the sick and dying, in desperate need of care, Kimbilio Hospice has lived up to its name. Can’t go to Kenya?  Then invite your friends and coworkers to run and provide a donation for this worthy hospice. Not a runner? Then consider donating and promoting this event on Facebook or Twitter. All funds go towards Kimbilio Hospice, which ELNEC trainer, Juli McGowen-Boit oversees. Check out this video about the event http://vimeo.com/62551913.  For further information and/or to donate, go to www.TeamLivingRoom.org.
Researchers at California State University, Long Beach would like to invite all individuals involved in palliative or end of life care to participate in a project examining interdisciplinary collaboration and quality of care.The research project is open to all professions and involves completing an online survey that will take approximately 10 -15 minutes. All responses are confidential. The link to the study is http://tinyurl.com/CSULB-Palliative-Care-IDT. Please feel free to forward this link onto all individuals involved in palliative and end-of-life care.
I Wasn’t Strong Like This When I Started Out:  True Stories of Becoming a Nurse

This book, edited by Lee Gutkind, is a collection of true narratives that reflects the dynamism and diversity of nurses.  Here, nurses remember their first “sticks,” first births, and first deaths, and reflect on what gets them though long, demanding shifts, and keeps them in the profession.  The stories reveal many voices from nurses at different stages of their careers—from one nurse-in-training who longs to be trusted with more “important” procedures, while a nurse practitioner wonders whether she has violated professional boundaries in her care for a homeless man with AIDS. What connects these stories is the passion and strength of the writers, who struggle against burnout and bureaucracy to serve their patients with skill, empathy, and strength. Click here for more information.

Janet & Me:  An Illustrated Story of Love and Loss

In words and drawings both candid and human, Stan Mack follows his eighteen-year relationship with Janet Bode, a lighthearted fling that beat the odds to become an enduring love affair. The only thing they couldn't beat was cancer. As Janet and Stan confront the jagged terrain of cancer, then navigate the twilight of terminal illness, two portraits emerge: of a woman who faced her cancer the same way she lived her life, with guts and charm; and of the man who held her close and shared her struggle. For anyone who can't resist a beautifully told love story, for anyone who is touched by someone suffering from serious illness and looking for emotional and practical guidance, and for anyone who appreciates a life lived to the fullest, Janet & Me will resonate long after the last page is turned. Click here for more information.    

Paging God: Religion in the Halls of Medicine

While the modern science of medicine often seems nothing short of miraculous, religion still plays an important role in the past and present of many hospitals. Through a combination of interviews with nurses, doctors, and chaplains across the United States and close observation of their daily routines, Wendy Cadge takes readers inside major academic medical institutions to explore how healthcare professionals and institutions address prayer and other forms of religion and spirituality. Cadge shifts attention away from the ongoing controversy about whether faith and spirituality should play a role in health care and back to the many ways that these powerful forces already function in healthcare today. Click here for more information.

The Hero Within:  Redeeming the Destiny We Were Born to Fulfill

In The Hero Within, Deborah Grassman, well-known speaker and lecturer and highly-acclaimed author of Peace at Last explains that when we dare to deal with distress and accept the idea that we will not succeed at everything our internal heroism can help us begin to redeem our destiny. She focuses on the roles of pain and suffering as inevitable parts of our lives. She explains that rather than becoming broken down by the pain in our lives, we can learn to open ourselves to these new experiences through our internal hero.  The Hero Within has been written to help people learn to redeem the suffering that we have all experienced by understanding a three-step process of abiding, reckoning, and beholding. It provides readers with the tools to do this, and will help them cultivate a willingness to develop the honesty, humility, and courage to make that inward journey. Click here for more information.

We are interested in your thoughts and suggestions about end-of-life nursing issues. What would you like to see in this newsletter? Do you have a story to share about how end-of-life nursing education has made a difference for your patients and their families?
Please forward your suggestions or comments to:

Pam Malloy
ELNEC Project Director
202-463-6930 ext. 238
End-of-Life Nursing Education Consortium (ELNEC)