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The Dr. Alfonsina Q. Davies
Epilepsy Foundation
May  2015 

 
 
 
WOULD YOU TANGLE WITH THIS WOMAN?
 
Our Nina passed away four years ago from Epilepsy (SUDEP). The commitment of our government agencies to provide resources for research into the causes and treatments, including the pharmaceutical and psychosocial sides is a national disgrace. 
 
There are 3,000,000 or more Americans with Epilepsy, 50,000 or more die every year, SIX PEOPLE DIE EVERY HOUR OF EVERY DAY. Epilepsy is not a disease which may come from a life style choice.  In 70% of the cases the cause is unknown. Yet the National Institutes of Health in 2014 spent less on epilepsy than on HIV/AIDS, Alcoholism, Breast Cancer, STD and Stroke.  Epilepsy is woefully underfunded.
 
What about treatment? Your health care provider can medicate or recommend  surgery. Should anyone have any kind of accident rehabilitation is easily available. For alcohoholism as well as for many other conditions, there is rehabilitation.  With epilepsy there are few if any programs for the afflicted. It is a lonely and sometimes very sad life for them.
 
What about the psychosocial side? What about the discrimination, depression, isolation and lack of social skills. What about the fear and the reporting requirements when looking for a job or while employed? Once a seizure occurs the job is gone.
 
We have learned that  few, if any, treatment programs exist for the psychosocial aspects of Epilepsy in America, let alone in other countries. Epilepsy is feared through ignorance, please help us spread this letter to all your friends so empathy and understanding about this disease can one and for all get the public support it deserves.
 
There is an urgent need for psychologists, psychiatrists, nurses and social workers.  Most learn "on the job", there is no money to train and invite more doctors into the field. Simply there are not enough people out there to help, and the resources are not coming through health care.  They MUST come from you!!!
 
Here are some reasons why Nadia is so angry. Watch on YouTube.
 
MAYBE YOU WILL BE ANGRY TOO and decide to HELP.
 
 

 
 
 
PLEASE CONTINUE TO SUPPORT THIS CAUSE AND
 
 
PLEASE, PLEASE CLICK ON THE RED BUTTON
 

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Created by Carlos Grangel, Grangel Studios, Barcelona, Spain  Copyright, 2014, by Thomas P. Davies and Nadia Q. Davies, Trustees
Nina (Alfonsina)  Age 1
e-mail us at info@ninascourage.org
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