NOVEMBER IS EPILEPSY MONTH, PLEASE WEAR PURPLE !!!!!
Welcome to the
Dr. Alfonsina Q. (Nina) Davies Epilepsy Foundation
                                                                 Special Edition November 2014
THE MISSION of the Dr. Nina Davies Epilepsy Foundation is to improve the lives of those afflicted through increased research efforts, a better treatment modality and the elimination of the stigma and prejudice that surrounds this disease in all facets of public life.     We must bring epilepsy "out of the closet"!!
The Poem and the Song, written especially for Nina.
The following poem, "BONDAD" was written by Nadia Davies about 18 months after the passing of her daughter, Dr. Alfonsina Q. (Nina) Davies, due to epilepsy.  A good friend, Cary Rothman, lead singer and founder of the group SLEDD, took the poem and created lyrics to add to a great piece of music.  The title of the song is "Nina's Song: Again'She lived her life to save a life (EPILEPSY)", and it will be sung for the first time in public on November 10, 2013.  Is also being recorded.
 
The Poem

Bondad

 
 
Nina Always Nina
 
Her sweet face was
as soft and white
as the finest silk
gray eyes like an early dawn
a heart-shaped little mouth
pink and sweet
like a new peach picked from a tree.

Her skin as delicate
and soft as new woven velvet,
her hair fine, black and shiny.
A better daughter there never was.
She was loyal and generous beyond.

Her soul and spirit
of this world were not.
Our good angel, our Alfonsina
her journey here was spent
helping others everywhere
she spread love and kindness to all.
She never complained
in spite of all the pain
and the seizures that began
on the day she was born.

Seizures, her constant companion
beset her all her life.
She faced epilepsy stoically
never uttered a word of despair,
hope and faith sustained her.

She was our guiding light
as she was to hundreds of others.
She will be the light and hope
for all those that suffer
“the sacred illness,” “epilepsy”, so named
by Hippocrates, the father of modern medicine.

The universe is much too small
there are no words, none that
can express the sorrow and great emptiness
that we feel. We are devastated
Nina your absence is unbearable.
we miss your love,  your presence
your laugh, your sweet smile
we are lost without you.
You were the sunshine that kept us warm.

Our darling daughter,
you are and always will be
an inspiration for all of us,
your parents students friends and colleagues.
You will inspire thousands
who will remember you  through your
“Chair,” established for research
to help  millions like you
who suffer from the “sacred disease.”

You will be the light of hope
 until a cure is found
for this dreadful, devastating disease.
You will provide strength and hope
to all those who read your story.

You will inspire them to keep fighting
to eradicate the prejudice and stigma
that surrounds anyone with seizures.
Your kindness and courage
as you faced cruelty and adversity
will be an example that will drive others
to fight  to end discrimination
to never give up.

Our dearest Nina, your stay
in this valley of tears
was much too short.
You had just begun to live,
 When one terrible night
the breath that gives life
stopped and took you from us.
You went to sleep and never woke up.
The horror of that night can never be
 told with mere words, we died with you.

Nina,you rose to heaven peacefully from your bed
an angel you were and as an angel you left.
Your memory gives us the strength
to keep working for your cause,
to find a cure for epilepsy.
Our Nina,You will live within our hearts and minds
until the day we meet again.

We love you so very much.

Mami and Daddy
Written July 30, 2012
The Words to the Song
 
Nina's Song : Again' She lived her life to save a life (EPILEPSY)

 
Her life was lived for many reasons
She always strived to be kind
Never sorrow, always thinking strong
Of ways to help save a life
 
N iceness and reason
I n a bumpy world
N ear to solving the problem,
A gain'
 
She lived her life to save a life !
 
Her sweet face, so soft and white
Gray eyes like an early dawn
In spite of all the endless pain
and the seizures she suffered all her life
 
Kindness and Reason
Inspiration for thousands
Stop the suffering for millions
The Chair
 
They live their lives, to save a life !
 
---------------------------------------------------------------------------------------
 
SUDEP Kills, in case you didn't know
how can we make this disease go away forever
when will I know when the next one's coming
The father makes it right, as NINA she is watching
 
E P I L E P S Y
 
Written for Nina Davies and  the Dr. Nina Davies Epilepsy Foundation.
 
We love you and
God Bless You,
 
Sledd, Cary ,Crystal and the VoxOx team thank you for everything !!!
 
 

 
NOVEMBER IS EPILEPSY MONTH, PLEASE WEAR PURPLE !!!!!
Coming Events - Save November 10, 2013
 
REMINDER  A terrific band, SLEDD, has taken on the cause of epilepsy and will be singing a song written especially for Nina. The headline band is  Queensryche starring Jeff Tate.    The words to the song will be posted on Facebook along with a poem written by Nadia Davies, Nina's mother on which the song words are based. 

The concert will start at 7:00pm  at the Ramona MainStage, 626 Main Street, Ramona, CA.  Doors open at 6:00pm.  Click on Ramona Main Stage for Tickets and Directions. 
 
Sign up for the Newsletter by going to: "News & Events" or by sending an e-mail to  info@ninascourage.org with "Subscribe" as the subject.
 Important links ......
          
 
NOVEMBER IS EPILEPSY MONTH, PLEASE WEAR PURPLE !!!!!
 
The Dr. Alfonsina Q. (Nina) Davies Epilepsy Foundation
http://www.ninascourage.org   e-mail:  info@ninascourage.org
 
PLEASE FORWARD TO THOSE ON YOUR MAILING LIST
This letter is written and distributed by Dr.Thomas P Davies and Nadia Q. Davies
No donations to the Foundation are used to pay for advertising, printing or publishing or non program expenses. We fund all related activities out of pocket.