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PWDA E-Bulletin
Edition #92 July 2014
 
ISSN 2202-0705
Image: Organisers and speakers at the Disability Network Zone in the Global Village at AIDS2014. L-R back row are: Matthew Bowden (PWDA Co-CEO), Suzanne Lau-Gooey (PWDA member), Jill Hanass-Hancock (HEARD, South Africa), Rados Keravica (Disability Rights Promotion International, Serbia), Alex Iantaffi (University of Minnesota, USA), Muriel Mac-Seing (Handicap International, Canada), Front: Jacques Lloyd (South African National AIDS Council).
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Dear ,
Welcome to PWDA’s July 2014 E-Bulletin.
 
Our E-Bulletin goes out to subscribers regularly by email. Please share this ebulletin with anyone you might think would like to receive it.
 
Organisers and speakers at the Disability Network Zone in the Global Village at AIDS2014 are pictured above. L-R back row are: Matthew Bowden (PWDA Co-CEO), Suzanne Lau-Gooey (PWDA member), Jill Hanass-Hancock (HEARD, South Africa),  Rados Keravica (Disability Rights Promotion International, Serbia), Alex Iantaffi (University of Minnesota, USA), Muriel Mac-Seing (Handicap International, Canada), Front: Jacques Lloyd (South African National AIDS Council).  
 
To be added or removed from our E-Bulletin mailing list or to change your details, please email us, click on the "Unsubscribe / Change Profile" link at the very end of this E-Bulletin or contact PWDA on one of the numbers listed at the end of this E-Bulletin. 
 
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If you would like to become a member of PWDA please visit pwd.org.au/membership.html or contact us for a membership form. 
 
PWDA Disability Rights Defenders
Disability Rights Defenders can change lives through regular, monthly, tax-deductible donations. These regular donations support:
  • systemic and legal advocacy projects,
  • members’ and stakeholders consultations,
  • other essential projects like the Boarding House project,
  • work with Disabled People’s Organisations (DPOs) in the Pacific,
  • information and training to people with disability and their associates.
Learn more about the Disability Rights Defenders and sign up online.
 
Contents
 
 

  • Jane - at home feeling safe again
  • Australian Tax Office Individual Taxpayer Liaison Group
ECONOMIC SECURITY AND EMPLOYMENT 
  • Have Your Say! 
  • Wage Justice Campaign - Update 
HUMAN RIGHTS AND THE CRPD
  • Equal recognition before the law
  • International AIDS Society Conference
  • Internships at PWDA
  • PWDA meets with NSW Minister for Disability Services
PREVENTING VIOLENCE AND ABUSE 
  • PWDA Royal Commission Disability Support Project - Update 
INTERNATIONAL DEVELOPMENT 
  • Supporting disability inclusive development
  • Disability Awareness and Responding to Sexual Assault
 
 
 
 
 
From the President
 
PWDA was well represented at the 20th International AIDS Conference, held in Melbourne.  PWDA supported a Disability Networking Zone (DNZ) which recognised the many issues that arise from HIV as a disability and from the experience of people with disability who have HIV.  Like those at the Conference, I was appalled and saddened by the senseless loss of researchers, health workers and activists in the downing in MH17 and offer condolences to all concerned. 
 
PWDA staff, board and members continue to seek the closure of institutions.  Discussions on this issue is always tricky and often heated so I appreciate the truth that our members bring to them.  We know from experience that no amount of sugar coating can remove the problems that come from linking people’s housing to 
 
 Photograph of Craig Wallace
Craig Wallace
President of People with Disability Australia
 
their personal supports.  Nor the stain of abuse that stems from grouping large numbers of vulnerable people together.  If we falter we only need to recall powerful personal stories like the late Kim Walker who talked about her time in Stockton in this edition of Link Up a few years ago. 
 
PWDA continues to provide strong advocacy following the release of the report from the McClure Welfare Review.   In the last few weeks I attended a national roundtable where we strongly advocated the continued importance of a safety net as part of the pillars of any new system as well as a focus on jobs.
 
July marked the start of the collection of the NDIS component of the Medicare Levy – a landmark contribution to sustaining the Scheme into the life of the new Parliament and one where PWDA played no small part.  We should be pleased with the effective contribution we continue to make to the NDIS.  
 
The last few weeks have also seen the release of the KPMG Interim Report: Review of the optimal approach to transition to the full NDIS and we responded quickly with comments in the media urging continued transition to a full scheme. 
 
PWDA welcomes the release of the progress report of the Joint Parliamentary Committee on the NDIS from its Inquiry into the implementation and administration of the NDIS.  The report highlights issues that we have heard about from members.  One of these is the uneven quality of some of the early plans developed and the importance of independent advocacy to people with disability preparing their plans and engagement with the NDIS.  PWDA also shares some concerns about the risk that Governments will divest themselves of their roles in disability in advance of the NDIS.  I support a greater focus on housing for people with disability and the idea that this should be a priority within COAG.  It’s time to take up the broader challenges of opening up the market for accessible and adaptable housing in the private sector as well as ensure that the supply of public and social housing is equipped to meet the needs of people with disability.  Going forward, it would be good to see more effort placed on encouraging people to feel confident enough to unbundle their money and to ensure that people with disability are in the driving seat in the implementation, administration and review of the NDIS.    
 
The NDIS and its delivery agency continue to be reviewed and examined closely which is how it should be. However people with disability have yet to deliver our verdict on how well the scheme is meeting its stated objectives. 
 
A task for us going forward will be to ensure that those at the centre of a person centred scheme get to deliver our own verdict about the extent to which the NDIS is delivering the kind of transformation that the Productivity Commission envisaged at its genesis.
 
On 28 June the Board invited people with disability to join us at a social media forum to discuss how we take back our voice as we approached the closure of ABC Ramp Up and the end of the dedicated Disability Discrimination Commissioner role held by a person with disability.
 
This forum was well attended and showed that we can never really lose our voice while we have a dedicated and growing membership. Pass on the word about joining People with Disability Australia (PWDA) – it’s online, easy and free.   
 
Craig Wallace
PWDA President
 
Follow Craig on Twitter via @CraigWtweets
 
PWDA Membership
 
Membership of People with Disability Australia
Do you believe in the equality and dignity of all people living with disability? Do you believe everyone has the right to fully participate in our society? 
 
Then show your support for equality and dignity and become part of a growing national disability rights movement in Australia!
 
It’s easy, online and it’s free.
 
Membership for Individuals
Membership for Organisations
 
If you represent an organisation incorporated in Australia with a governing body and a membership base of at least 75% of people with disability, your organisation can take Full Organisational Membership.
 
If you represent an organisation interested in supporting the disability rights movement and the aims and objectives of PWDA, your organisation can take Associate Organisational Membership.
 
 
Media Releases and Alerts
 
28 July: Have Your Say! about Cost of Disability
https://www.surveymonkey.com/s/KN5YC6Y
 
21 July: Have Your Say! about Episodic Disability
 
16 July: Have Your Say! about Employment Barriers
 
9 July: Have Your Say! about proposed changes to the Disability Support Pension (DSP)  https://www.surveymonkey.com/s/TYL5MTN
 
Subscribe here to receive PWDA Alerts and PWDA Media Releases as they become available.
 
 
PWDA News
 
INDIVIDUAL ADVOCACY
 
Jane* – at home feeling safe again 
Jane, a young woman with disability was living in private rental housing in a security block after leaving a domestic violence situation, which enabled her to claim a Housing NSW subsidy under the Staying Home Leaving Violence program.  She was told that she had to relocate to an inappropriate property owned by Housing NSW, even though this would bring her into direct contact with her domestic violence perpetrator.
 
At the time of approaching PWDA for advocacy support, Housing NSW had cancelled Jane’s rental subsidy because she was refusing to relocate. Jane was experiencing post-traumatic stress disorder (PTSD) and financial difficulty, and was unable to engage in medical treatment due to the stress of being imminently homeless.
 
 
IMAGE: Green road sign. The word Advocacy is spelt out in white capital lettersIMAGE: Green road sign. The word Advocacy
is spelt out in white capital letters
PWDA’s individual advocate supported Jane to negotiate with Housing NSW to reinstate her subsidy for six months while she receives treatment and care for her emotional and mental injuries.  Continuation of the subsidy will be reviewed after this six month period.   
 
Jane has been able to book medical treatment with her specialist and focus on her mental health without worrying about becoming homeless.
 
For individual advocacy support contact the Disability Rights Information Service (DRIS) between 9:30 am and 4:30 pm (AEST) Monday to Friday on (02) 9370 3100 or Toll Free on 1800 422 015 or TTY Toll Free on 1800 422 016 or emaildris@pwd.org.au
 
* not her real name
DISABILITY SUPPORT AND THE NDIS
 
Australian Tax Office Individual Taxpayer Liaison Group
PWDA is a member of the Australian Tax Office (ATO) Individual Taxpayer Liaison Group.  The Group receives and provides information about issues and concerns that individuals, including people with disability may have in accessing the ATO and its services.
 
PWDA has been highlighting the need for the ATO to work closely with the National Disability Insurance Agency (NDIA) to ensure that accessible information is available to people with disability about their obligations and entitlements in relation to tax and superannuation, particularly as people move to self-managed funds and potentially become employers of support staff. 
 
 
 
 
IMAGE: A light shines on a wheelchair from the right. The shadow on the left is in the shape of a dollar sign.
IMAGE: A light shines on a wheelchair from the right.
The shadow on the left is in the shape of a dollar sign.
 
PWDA is also working with the ATO to ensure that information on the ATO website is accessible.  If you would like to provide feedback about your experience of obtaining information regarding income tax and the NDIS from the ATO website, contact PWDA. 
 
For further information contact Therese Sands, Co-Chief Executive Officer on one of the numbers listed at the end of this E-Bulletin or email thereses@pwd.org.au 
 
Follow Therese on Twitter @TheresePWDA
 
ECONOMIC SECURITY AND EMPLOYMENT
 
Have Your Say! Member feedback regarding Welfare Reform and budget changes
Over the past few weeks, PWDA has been asking members and constituents to give their feedback regarding the recent budget changes and proposals in the Welfare Reform Interim Report. This feedback is being used to directly inform our submissions and correspondence to the Australian Government regarding these changes.
 
PWDA has written a submission to the Senate Community Affairs Committee Inquiry into Social Services and Other Legislation Amendment Bills 1 and 2. A number of the measures proposed in the Bill will affect people with disability, and we have made specific recommendations around these changes.
 
 
 
IMAGE: Someone points to black bold block letters on a glass board which spell out You Have A Voice
IMAGE: Someone points to black bold block letters
on a glass board which spell out You Have A Voice
 
We are keen to hear from any members who will be affected by the budget changes to the Disability Support Pension (DSP) for people under the age of 35. The Government intends to introduce tighter participation and compliance requirements for DSP recipients under 35 with assessed work capacity of eight hours or more. In addition, recipients under 35 who were granted DSP between 1 January 2008 and 31 December 2011 are to be reassessed under the new impairment tables. 
 
Working with the National Welfare Rights Network, PWDA are researching the potential impact of these changes. If these budget measures will affect you and you are willing to share your views and concerns, contact Kate Finch, Advocacy Projects Manager on one of the numbers listed at the end of this E-Bulletin or email katef@pwd.org.au
 
We are also keen to hear about the following:
 
Cost of Disability – how does it affect you?
We know it costs people with disability more than other people to do almost anything – work, study, travel, eat, relax etc and this week we want to hear your examples and experiences how 'cost of disability' affects you.
 
Some questions are: How important is it that the Government recognise the “cost of disability”? How important is it that Government provide the support you need to participate in society like other people? How would it affect you if you had no access to any income support at all? We want to share your comments and stories with the Australian Government in our work. 
 
You can also complete this short survey https://www.surveymonkey.com/s/KN5YC6Y to give your feedback on the budget measures and the welfare reform or email Kate Finch, Advocacy Projects Manager at katef@pwd.org.au
 
Employment Barriers
We want to hear your comments, experiences and concerns about all the Employment Barriers you experience.
 
Some questions are: What are the main barriers you face in finding and keeping a job? Have you ever used an employment services provider and did you get the support you needed? What could the government do to enable and support you to get into employment?
 
You can also complete this short survey https://www.surveymonkey.com/s/YWDXS35 to give your feedback on the budget measures and the welfare reform. If you share your comments or stories with us, PWDA will include them in our representation to government.
 
Access to the Disability Support Pension (DSP)
People with disability under the age of 30 could find they are no longer eligible for the DSP. What would happen to you if you could not receive the DSP? If you share your comments or stories with us, PWDA will include them in our representation to government.
 
You can also complete this short survey https://www.surveymonkey.com/s/TYL5MTN to give your feedback on access to the DSP and the welfare reform
 
Input to the Interim Report on Welfare Reform is due August 8. Please continue to let us know your thoughts and concerns through the PWDA Facebook page, the weekly surveys, or contact Kate Finch, Advocacy Projects Manager on one of the numbers listed at the end of this E-Bulletin or email katef@pwd.org.au
 
Follow Kate on Twitter @katepwda

 
Wage Justice Campaign - Update
With support from the Reichstein Foundation, PWDA has been conducting the Wage Justice Campaign in partnership with AED Legal Centre.
 
In June 2014, the Australian Government put forward draft legislation, the Business Services Payment Scheme Bill 2014.  The Bill would enable a payment to be made to employees with intellectual disability who work in Australian Disability Enterprises (ADEs) and who have had their wages assessed using the Business Services Wage Assessment Tool (BSWAT). 
 
 
 
IMAGE: Gordon Prior (middle) surrounded by supporters. (Credit: ABC)
IMAGE: Gordon Prior (middle) surrounded by supporters. (Credit: ABC)
In 2013, the High Court of Australia confirmed a Federal Court decision that the BSWAT discriminated against people with intellectual disability ‘as a class of people’.  The decision is explained in a speech made in Parliament by Mr Adam Bandt MP, when he recommended that the Payment Scheme Bill be the subject of Inquiry.  Click here to watch his speech on youtube.
 
PWDA made a submission to the Senate Standing Committee on Community Affairs’ Inquiry into the Bill.  PWDA strongly opposes the Bill because it asks people with intellectual disability to accept a minimal payment, not compensation for the wage injustice, discrimination and significant economic loss that they have experienced.  If they accept this payment, they must sign away their right to complain or pursue a legal remedy for any past or future wage injustice, discrimination and economic loss.  The Bill doesn’t end the use of the discriminatory BSWAT - they will continue to experience the same discrimination and economic loss indefinitely.  The Bill also allows for ‘nominees’ to be appointed to make decisions on behalf of employees in ADEs in regard to the payment scheme, rather than address the supports that need to be provided to assist an employee to make their own decisions.  It also creates substantial concerns regarding the wide discretion and vested interests of ‘nominees’.  Click here to download a copy of our submission
 
PWDA also appeared before the Senate Community Affairs Committee at its public hearing conducted in Melbourne on 24 June 2014 and outlined our concerns. 
 
If you work, or know someone who works at an ADE, are affected by this Bill and want to tell your story, please contact us at pwd@pwd.org.au
 
 
For further information contact Ngila Bevan, Manager Advocacy and Communications, on one of the numbers listed at the end of this E-Bulletin or email ngilab@pwd.org.au
 
Follow Ngila on Twitter @NgilaPWDA
 
HUMAN RIGHTS AND THE CRPD

Equal recognition before the law
In May, the Australian Law Reform Commission (ALRC) published a discussion paper, ‘Equality, Capacity and Disability in Commonwealth Law’ as part of their inquiry into equal recognition before the law and legal capacity for people with disability.  The discussion paper proposed four national principles to guide recognition before the law for people with disability and a national framework to recognise supported decision making. The discussion paper then applied these concepts to different areas of Commonwealth law.  PWDA made three submissions to the ALRC in response to the discussion paper:
 
 
IMAGE: A computer keyboard. The word Justice is spelt out in white letters on a blue key.
IMAGE: A computer keyboard. The word Justice
is spelt out in white letters on a blue key. 
 
1) In collaboration with the Australian Centre for Disability Law (ACDL) and the Australian Human Rights Centre, we argued that the proposed national principles and national framework were not compliant with the Convention on the Rights of Persons with Disabilities (CRPD).  We suggest that a universally applicable mechanism should be created, through which people can express their will and preferences, and have that will and those preferences recognised as decisions under the law.  This mechanism should not be directly concerned with people with disability per se, but on how our laws and policies should operate to enable the realisation of fundamental rights in a fair, accessible, and non-discriminatory way. 
Click here to download our submission.
 
2) In collaboration with Dr Dinesh Wadiwel from the University of Sydney, PWDA wrote a letter to the ALRC expressing our concerns that some of the ALRC proposals potentially legitimate the use of restrictive practices and seclusion.  We advocated that legal capacity frameworks should operate to eliminate rather than justify the use of restrictive practices and made a series of recommendations in that regard. Click here to download our submission on legal capacity and torture and other cruel, inhuman or degrading treatment or punishment here.
 
3) In collaboration with the National Association of Community Legal Centres (NACLC), PWDA made a submission about how laws regarding jury service, participating in legal proceedings and giving evidence as a witness should change so that the legal capacity of people with disability is recognised.  
Click here to download our submission on access to justice
 
The ALRC is due to publish their final report in August 2014.
 
PWDA is very grateful to Vanessa Sheer for all of her background research and insightful contributions to these submissions.   Vanessa is a JD student at the University of New South Wales and completed a Human Rights Law and Policy internship with PWDA in June 2014.
 
For further information contact Ngila Bevan, Manager Advocacy and Communications, on one of the numbers listed at the end of this E-Bulletin or email ngilab@pwd.org.au
 
Follow Ngila on Twitter @NgilaPWDA
 

International AIDS Society Conference
From 20-25 July, the 20th International AIDS Conference was held in Melbourne.  PWDA assisted with organising a Disability Networking Zone during the Conference, to highlight the interrelation between disability and HIV: people living with HIV (PLWHA) are part of the disability rights movement and face stigma and discrimination; and people with disability are often excluded from HIV information, counselling and testing.
 
PWDA Co-Chief Executive Officer, Matthew Bowden presented two papers in the Disability Network Zone: ‘Advocacy, Human Rights and the Social Model of Disability: A Disabled Peoples Organisation perspective of supporting PLWHA’ and ‘Health In Prison: HIV prevention for people with disability in prisons’.
 
 
IMAGE: AIDS 2014 Logo
IMAGE: AIDS 2014 conference logo. 
 
He also presented at the UNAIDS hosted session entitled ‘The World's Biggest Minority Left Behind: National HIV-Responses Need To and Can Include Disability’.
 
This event at the Melbourne Convention and Exhibition Centre bought together scientific, medical, political and activist audiences to share global strategies and ideas. For further information contact Matthew Bowden, Co-Chief Executive Officer, on one of the numbers listed at the end of this E-Bulletin or email matthewb@pwd.org.au  
 
Follow Matthew on Twitter @MatthewPWDA
 
 

Internships at PWDA
PWDA has recently provided opportunities to two Interns who share their experiences below:
 
Sue Cochrane from the University of Sydney
I was delighted to have an opportunity to undertake an Internship with People with Disability Australia (PWDA) as part of my Masters in Development Studies at the University of Sydney. It combined my interest in the rights and inclusion of people with disability with the opportunity to learn more about disability issues within the development agenda as a whole. PWDA staff were welcoming and supportive during my time there and were happy to share their knowledge with me when asked.
 
 
 
IMAGE: Books piled in a heap. An open book sits on top of the pile.
IMAGE: Books piled in a heap. An open book
sits on top of the pile. 
I valued having the opportunity to contribute to a submission being made by PWDA on disability-inclusion in aid funding and to complete some research for them. I now understand more about disability-inclusion from the perspective of a Disabled People’s Organisation (DPO) and feel my input was useful and appreciated. I would like to thank particularly Ngila Bevan, who supervised me, and Therese Sands who provided invaluable input on the submission. I would recommend an Internship with PWDA as a stimulating and fulfilling opportunity for anyone interested in the rights of people with disability.
 
Vanessa Sheer from the University of NSW
Undertaking an internship with PWDA has provided me with valuable insights into the advocacy and law reform process through experiential learning. I have developed an appreciation of the role of advocacy in submissions to governments and also within the broader political environment, mainstream media and social media. I also noted how PWDA actively engages with its stakeholders to inform advocacy campaigns and submissions.
 
The way PWDA approaches an issue with a clear human rights framework has been great to observe. It will be something I'm sure I will reflect on many times in future practice. This placement has been a valuable part of my learning process and I would like to thank Ngila Bevan, for being a very supportive supervisor.
 
For further information contact Ngila Bevan, Manager Advocacy and Communications, on one of the numbers listed at the end of this E-Bulletin or email ngilab@pwd.org.au
 
Follow Ngila on Twitter @NgilaPWDA
 
SOCIAL INCLUSION AND ACCESSIBILITY
 
Australian has phased out signatures on credit card transactions
From Friday 1 August, signatures will no longer be accepted with credit card transactions. A Personal Identification Number (PIN) will be the only acceptable form of card verification to authorise transactions using a credit card.  This move to PIN-only transactions is to reduce the level of fraud in Australia on card transactions.
 
PWDA has had contact with people with disability outlining concerns around these changes to credit card transactions. The move from signatures to a PIN introduces barriers for some people with disability, particularly those who may find it difficult to remember a pin. We also hold concerns that some people with disability may have to provide their PIN to a third party in order to access their personal finances, making them susceptible to financial abuse.
 
 
 
IMAGE: A person enters their pin into machine. With their left hand they shield the keypad.
IMAGE: A person enters their pin into machine.
With their left hand they shield the keypad.
 
Council on the Ageing Australia's Chief Executive, Ian Yates has said “The council has had reports of bank staff advising elderly people with memory problems to carry a written record of their PIN.” For security reasons, your PIN must never be shared with anyone, even staff at banks or other financial institutions and should not be written down.
 
The National Network of Adult and Adolescent Children who have a Mentally Ill Parent (NNAAMI) have carried out extensive surveys of various bank’s responses to the request for signature only card options. Click here to download their document from their website.
 
PINwise, the initiative of the Australian payments card industry to encourage the use of PIN has a website with more information at www.pinwise.com.au  PINWise advises customers who have difficulty using a PIN to contact their bank or financial institution to arrange for a signature preferred card to allow them to continue to sign for access to their personal finances.
 
If you have difficulty obtaining a signature preferred card or encounter any discrimination in regards to your requests for a signature preferred card, and you require individual advocacy support please contact the Disability Rights Information Service (DRIS) between 9:30 am and 4:30 pm (AEST) Monday to Friday on (02) 9370 3100 or Toll Free on 1800 422 015 or TTY Toll Free on 1800 422 016 or email dris@pwd.org.au
 
Articles highlighting concerns
 
 
 
 
 
 
HOUSING AND LIVING IN THE COMMUNITY
 
PWDA meets with NSW Minister for Disability Services
PWDA recently met with NSW Minister for Disability Services, the Hon. John Ajaka MLC.  We had a discussion on a number of issues including the ongoing role for representation and independent advocacy for people with disability in NSW to assist them access all government services.  We also again congratulated the Minister for maintaining a strong position on the closure of the Stockton Centre in the context of ongoing political controversy and resistance. We also noted the importance of ensuring that genuine community housing options were available to avoid a regression to ‘specific purpose facilities’ that evidence has shown does not improve outcomes for people with disability. 
 
We discussed briefly the importance of people with disability living in their community, and the problems with assuming that those who had lived in an institution previously would only ever be capable of institutional living.
 
PWDA thanks the Minister for productive discussion.
 
For further information contact Jess Cadwallader, Advocacy Projects Officer on one of the numbers listed at the end of this E-Bulletin or email jessc@pwd.org.au 
 
Follow Jess on Twitter @JessPWDA
 
 
 
IMAGE: Figure in the shape of a person holds a roof over their head.
IMAGE: Figure in the shape of a person
holds a roof over their head. 
 
 
Community Living Consultation Group
PWDA is a member of the Community Living Consultation Group convened by the Ombudsman NSW to work with the Department of Ageing, Disability and Home Care (ADHC) on the closure of institutions.  The Group considers important practice issues in relation to the devolution of institutions, including the critical issue of engaging residents, their families and their communities in a meaningful, collaborative manner.  A key focus of discussion is the current closure of the Stockton Centre.  It is made up of representatives from peak disability organisations, disability advocacy organisations, service providers, government officers and researchers. 
 
For further information contact Therese Sands, Co-Chief Executive Officer on one of the numbers listed at the end of this E-Bulletin or email thereses@pwd.org.au 
 
Follow Therese on Twitter @TheresePWDA
 

PREVENTING VIOLENCE AND ABUSE
 
PWDA Royal Commission Disability Support Project – Update
PWDA is facilitating a Royal Commission Disability Forum in Sydney on Monday 11 August.   Commissioner Robert Fitzgerald will provide an overview of the Royal Commission into Institutional Responses to Child Sexual Abuse and answer questions.  This forum will explain the processes and work of the Royal Commission to people with disability, their families, friends, supporters, and organisations. It will explore the various ways that children and adults with disability can participate in the Royal Commission, especially through telling their own story of sexual abuse in an institutional setting.
 
 
 
IMAGE: Logo for the Royal Commission into Institutional Child Sexual Abuse

IMAGE: Logo for The Royal Commission
into Institutional Child Sexual Abuse
 
Date: Monday 11 August 2014
Time: 11.00am-12.30pm
Location: York Conference and Function Centre (Bowlers Club), Bass Suites,
                    Level 2, 99 York Street, Sydney NSW 2000

RSVP: by Friday 8 August emailstakeholders@childabuseroyalcommission.gov.au
Please indicate if you have any participation or access needs, such as an interpreter.
For more information, please contact Davina Dressler by calling (02) 8282 3885, or on emailstakeholders@childabuseroyalcommission.gov.au
 
PWDA has been funded by the Department of Social Services (DSS) to provide individual advocacy support to people with disability across Australia who are affected by the Royal Commission. If you would like to access this, please contact us on the toll free number below, or via dris@pwd.org.au
 
If you are a person with disability and you might want to tell your story to the Royal Commission, you can contact us on 1800 422 015 or TTY 1800 422 016.
 
For further information contact Jess Cadwallader, Advocacy Projects Officer on one of the numbers listed at the end of this E-Bulletin or email jessc@pwd.org.au 
 
Follow Jess on Twitter @JessPWDA
 
 
Royal Commission Deaf Community Information Forum
The Royal Commission is holding a Deaf community forum organised by the Deaf Society of NSW. 
 
This information session is specifically for people who are Deaf, deafblind and hearing impaired, as well as their families, friends and carers, service providers and organisations. It will be open to everyone, and will also be webcast
 
Deaf Community Forum
Date: Monday 4 August 2014 
Time: 5.30pm-7.30pm 
Location: Park Royal Hotel, 30 Phillip Street, Parramatta

RSVP: http://deafsocietynsw.org.au/events_main/event/479/
For more information, contact Danni Wright, at dwright@deafsociety.com
For more information and to RSVP, please visit the website
 
For further information contact Jess Cadwallader, Advocacy Projects Officer on one of the numbers listed at the end of this E-Bulletin or email jessc@pwd.org.au 
 
Follow Jess on Twitter @JessPWDA
 
INTERNATIONAL DEVELOPMENT
 
Supporting disability inclusive development
Earlier this year the Department of Foreign Affairs and Trade (DFAT) published a consultation paper, ‘Developing a New Disability Strategy for Australia’s Aid Program 2015-2020’. The paper sought views on how effectively the Australian aid program has implemented disability-inclusive development to date and ideas for future policy approaches and priorities to input into the 2015-2020 strategy. 
 
PWDA’s submission to DFAT advocated for a rights based approach to aid based on the UN Convention on the Rights of persons with Disability (CRPD); increased recognition and support for the role of Australian DPOs in supporting inclusive development; and the need to resource DPOs in aid recipient countries to ensure effective aid delivery.
 
PWDA also meet with the disability inclusion team within the aid program at DFAT to discuss key aspects of our submission.
 
PWDA is very grateful to Intern Sue Cochrane for preparing our submission to DFAT. Sue is a Development Studies student at Sydney University and completed a one month Policy and Advocacy internship with PWDA in July 2014.  As part of her research Sue also wrote a paper for PWDA to assist us in our international development work: ‘Community-based rehabilitation: Does it have a place in Australia?’
 
For further information contact Ngila Bevan, Manager Advocacy and Communications, on one of the numbers listed at the end of this E-Bulletin or email ngilab@pwd.org.au
 
Follow Ngila on Twitter @NgilaPWDA
 
PWDA TRAINING
 
Disability Awareness and Responding to Sexual Assault
Are your staff confident when responding to sexual assault matters regarding people with disability?

In response to the Royal Commission into Institutional Child Sexual Abuse to assist victims and to support the prevention of further abuse PWDA is placing greater emphasis on the delivery of training to service providers nationally specific to Disability Awareness and Responding to Sexual Assault. 

P
WDA has extensive experience in the development and delivery of training across a wide range of disability areas including Responding to Sexual Assault, Disability Awareness and Responding to Abuse and Neglect of People with Disability. 
 
 
 
IMAGE: A person holds up a pink card with white lowercase letters which spell out training.IMAGE: A person holds up a pink card with white lowercase letters which spell out training.
Our two-day Responding to Sexual Assault training aims to challenge myths surrounding sexual assault and people with intellectual disability, build capacity of staff to support victims of sexual assault, as well as decrease the vulnerability of people with intellectual disability to this crime. We will also explore guidelines around Good Practice when providing personal care, Impact of Sexual Assault and Responding to Sexual Assault and Creating Safe Environments.

Training sessions are highly interactive and participants work together to develop strategies and procedures, with guidance from experienced trainers who have direct experience of disability.
For further information contact Greg Robertson, Training Manager on one of the numbers listed at the end of this E-Bulletin or email gregr@pwd.org.au 

Greg is also on Twitter @gregpwda
 
DISABILITY NEWS
 
International News
 
10 July 2014
IDA Media Release
Maryanne Diamond has been elected chair of the International Disability Alliance (IDA) Board. Maryanne has served as president of the World Blind Union from 2008–2012 and vice-chair of the Alliance from 2013–2014. She is a woman with disability and a strong advocate of people with disability.  “I look forward to the work ahead and to continue the excellent work of those who came before me,” said Ms. Diamond.  Yannis Vardakastanis, president of the European Disability Forum and chair of IDA from 2013–2014 said “I am sure she will lead IDA into the future with prudence, vision and determination. I am indeed happy to hand the position of chair to such a great woman with a disability.”
 
Maryanne Diamond has worked closely with PWDA on human rights issues, including undertaking the national consultations during the development of the CRPD in her former role at Vision Australia and AFDO.
 
10 July 2014
Disability Rights Fund Media Release
The Disability Rights Fund (DRF) – a grantmaking collaborative between donors and the global disability community which supports the human rights of persons with disabilities – today announced its second 2014 grants round, “Our Voices, Our Rights, Our Future.” 
 
23 July 2014
James Ward, The Conversation
Indigenous people are estimated to comprise 4.5% of the total global population. They are often overrepresented in HIV data and recognise themselves as being particularly vulnerable to HIV.
 
15 July 2014
Jakarta Post
The National Commission on Human Rights (Komnas HAM) said that voters from vulnerable groups, such as people with disabilities, prison inmates and hospital inpatients, were well facilitated during the presidential election on 9 July 2014.
 
National News
 
14 July 2014
As the Age Discrimination Commissioner Susan Ryan today adds Disability Discrimination to her portfolio, she's announced plans to hold a National Disability Forum to work out ways she can improve lives for Australians with disabilities.
 
20 July 2014, The Age
Twelve years ago a regional AIDS Conference took place in Melbourne. At the time concerns were growing about the impact of AIDS on global security. There were dire forecasts that we were facing a global pandemic.
 
9 Jul 2014, The Conversation
Nobel Laureate Professor Joseph Stiglitz says Australia should make sure its international “brand name” is for its high-quality services.
 
21 July 2014
Victorian Human Rights and Equal Opportunity Commission
People with disability are being routinely denied the basic human right of access to justice.
 
3 July 2014
ABC Overnights
People with disability have it tough, but is the Federal Budget going to put even more of a strain on people who rely on the Disability Support Pension (DSP). Trevor discusses this with Craig Wallace President of People with Disability Australia.
 
Nominations are now open for the 2014 Human Rights Awards for people who have contributed to human rights in Australia
 
17 July 2014
Daily Liberal
Aboriginal and Torres Strait Islander children face greater risks to their safety-including higher rates of child abuse and neglect, sexual assault, and hospitalisation and death from injury than non-Indigenous children, according to a paper released last week by the Australian Institute of Health and Welfare (AIHW).
 
27 July 2014
Daniel Webb, Human Rights Law Centre
Governments should ensure that people with disability fully enjoy the right to vote by ensuring that all people who express a wish to vote are provided necessary supports and assistance.
 
30 July 2014
ADB July Equal Time
The President of the Anti-Discrimination Board of NSW, Stepan Kerkyasharian, has expressed concern that the changeover to PIN-only credit card transactions on August 1 may affect people with certain kinds of disabilities.
 
Australian Capital Territory News
 
27 June 2014
ACT Government Press Release
Twenty disability service providers including the Cerebral Palsy Alliance, Koomarri and Canberra Men's Centre will share in $1 million worth of sector development funding to help prepare for the National Disability Insurance Scheme (NDIS).
 
New South Wales News
 
16 July 2014
Kim Arlington, SMH
When Alex Jones took his oath as a juror in the Parramatta District Court on Wednesday, he did it in sign language.
 
Northern Territory News
 
9 July 2014
Jane Bardon, ABC News
On the day of her funeral, the family of a 17-year-old girl who took her own life in residential care in Darwin are trying to find out what factors led to her death.
 
Queensland News
 
23 July 2014
Erica Baigrie, Sunshine Coast Daily
KEVIN Crawley has been on the Disability Support Pension for 10 years and wants to re-enter the workforce, but is continually being faced with road blocks.
 
23 July 2014
Bill Hoffman, Caboolture News
THE introduction of a National Disability Insurance Scheme has the potential to create businesses and jobs to help people enjoy better lives, Sunshine Coast Access Advisory Network spokeswoman Kay Maclean says.
 
South Australia News
 
1 July 2014
ABC PM
New group of children became eligible for funding today, as the National Disability Insurance Scheme (NDIS) enters its second year.
 
Tasmania News
 
13 July 2014
Jodie Stephens and Scott Gelston, The Examiner
They were traditionally known as ambulance drivers, but Tasmanian paramedics are part of an exciting, fast-evolving field.
 
17 July 2014
Paul Kooperman, ArtsHub
Pain is inevitable but suffering is optional; a frank look at the arts in Australia, why there's pain and how to cope.
 
Victoria News
 
Jenni Henderson, ABC Gippsland
Kim Ryan feels like a fading photograph, as the Federal Government reassess the Disability Support Pension she relies on, she is scared of applying for jobs in a tough
 
16 July 2014
Anthony Rebelo, GNN SX
Anthony Rebelo talks to trans activist and educator Jez Pez about the often overlooked issue of sex between trans men and bio men.
 
Western Australia News
 
Media release, Uni of Western Australia
Think of that colleague or employee who always has one eye on Facebook or Twitter, or the one who dominates the office with stories about their week-end.  They might be wonderful in customer service, but what about reading cancer screening tests or checking software programmes?
 
16 July 2014
Caitlyn Gribbin and Dale Owens, ABC News
The mother of a man who died when power was cut to his respirator during a Perth storm says no-one is to blame for the tragedy.
 
17 July 2014
ABC News
A report on the struggles of disabled Indigenous people in the West Kimberley has found some residents are foregoing food to pay for medical treatment.
 
Consultations, Surveys and Petitions
 
Below are consultations, submissions, surveys and petitions for the benefit of PWDA members and subscribers to participate, get active and make your voice heard on a range of issues relevant to people with disability from a range of different organisations, researchers and individuals. Please consult with the specific survey/consultation/petition if you require more information.
 
CONSULTATIONS & SUBMISSIONS
 
Domestic Violence in Australia
The Senate Committee on Finance and Public Administration Inquiry into Domestic Violence in Australia. Closing date for submissions is Thursday 31 July.
 
The Forrest Review
The Government will be undertaking a public consultation on the findings and recommendations of the Forrest Review. Submissions are now open and the closing date is Saturday 20 September 2014.
 
Welfare Reform 2014
The Reference Group on Welfare Reform has released their much anticipated Interim Report, A New System for Better Employment and Social Outcomes.
The Interim report is now open for public consultation. The closing date for submissions is Friday 8 August
 
 
SURVEYS
 
Accessing accessible amenities

Attitudes to sexuality, relationships and child-rearing: A study about people with genetic neurodevelopmental disorders – University of Newcastle
 
Autism Spectrum Disorders – University of Sydney
 
Brain Injury Australia (NSW) Newsletter Survey July 2014
https://www.surveymonkey.com/s/7TW9HPS
 
Disability and Mental Health – PDA
 
Disability discrimination in employment in Australia – ANU
 
Do-It-Yourself Home Modifications – UNSW
 
Employment For All – NCID
 
Impact of Ageing on Needs of People with Mobility Limitations – PDCN
 
On-line survey for dyslexia in Victoria – University of Melbourne
 
Perceptions of Dementia, causes and sources of information – Canberra Uni
 
Private vehicle access, modification and trip planning by people with a disability – UTS
http://utsbusiness.az1.qualtrics.com/SE/?SID=SV_cOXonyWdHig8lcV
 
Review of the ADHC Behaviour Support Policy and Practice Manual
 
Stepping Stones Triple P Project
 
Brain & Mind Research Institute Research
Seeking people aged 16- 30 years who have an intellectual disability that is NOT due to a known developmental disorder, such as Down syndrome, Autism, Fragile X etc, to participate in a brain imaging study. If you would like to participate, please call Lauren Rice on 9114 4106 or email her at lauren.rice@sydney.com.au.
 
 
 
PETITIONS
 
Save ABC Ramp Up! The only consistent voice for people with disability in the mainstream media.
 
Archbishop Wilson: stop avoiding responsibility for abuse of our children & help pay for counselling
 
Federal, State & Local Government, employers in business & the third sector: Work together to create 20,000 jobs a year for people with disability.
 
Google, Microsoft, Yahoo, eBay, Twitter, Yelp, Facebook: It's time to finally kill CAPTCHA
 
 
NSW Transport Minister: Increase the Taxi Transport Subsidy Scheme for people living with disabilities
 
Transport Minister Gladys Berejiklian: Do my commute for a day - try to use Sydney trains in a wheelchair
 
If you would like to promote your consultation, survey or petition
in the PWDA EBulletin please email pwd@pwd.org.au
New Resources
 
AIHW report: Disability support services: services provided under the National Disability Agreement 2012-13
In 2012-13, Australian governments spent $7.2 billion on disability support services under the National Disability Agreement. More than 312,500 people used services during this time. The most common services users were people with intellectual, physical and psychiatric disability.
 
The Politics of Disability: a need for a just society inclusive of people with disabilities by Peter Gibilisco
http://www.ccbpublishing.com/pgibilisco.html
 
Engaging Youth with and without Disability
From 9-13 June 2014, in conjunction with the 7th session of the Conference of States Parties to the CRPD (COSP7), UNICEF’s the Disability Section along with the Global Partnership on Children with Disabilities (GPcwd) successfully organised week-long advocacy and learning events for members of the Youth Council of GPcwd in New York.  20 young influencers with and without disability, representing all five regions in the world, came together to explore the intersection of inclusion, stigma, discrimination and innovative approaches in the context of the post-2015 agenda.  The youth members also took part in an online global discussion, called UNICEF Activate Talk on Youth with Disability and Innovation: Making the World Inclusive for ALL
A summary of the Activate Talk is available at https://vimeo.com/100993735
 
Zambia: People With Disability Left Behind on HIV Response
Human Rights Watch (HRW) have released a report We Are Also Dying of AIDS: Barriers to HIV Services and Treatment for Persons with Disabilities in Zambia, in collaboration with local DPOs and HIV organisations. While the Zambian Government has made important progress in the fight against HIV, people with disability are highly vulnerable to HIV risk factors (such as poverty, sexual violence and lack of access to education and health care) and have been left behind in the national HIV response. This report documents the barriers experienced by people with disability, including lack of access to HIV prevention information, testing and treatment. The report urges the Government and international donors to develop disability-specific HIV services and ensure accessibility and non-discrimination within mainstream HIV services.
http://www.youtube.com/watch?v=BaE7MXf92Nk
 
Inquiries, Reviews and Commissions
 
Reducing Legal Barriers for People with Disability
On 7 June 2013, the Attorney-General announced a public consultation on the draft terms of reference for an Australian Law Reform Commission (ALRC) inquiry into equal recognition before the law and legal capacity for people with disability. The deadline for submissions is by close of business on 28 June 2013.
 
Conferences and Events
Below are details of conferences and events to the end of September 2013.
 
4 Aug 2014: Parramatta, NSW Royal Commission into Institutional Responses to Child Sexual Abuse Information Session at the Deaf Society of NSW.
 
4-5 Aug 2014: Melbourne VIC Strengthening Disability Advocacy Conference 2014: Champions of Change, Melbourne Park Function Centre.
http://www.daru.org.au/strengthening-disability-advocacy-conference
 
6 Aug 2014 Bankstown NSW Get More Skills – for people with disability and their family members, Bankstown Sports Club. Arabic Community
 
7-8 Aug 2014: Gold Coast QLD Australia's Disability Employment Conference, Mercure Gold Coast Resort Queensland
 
7 Aug 2014: Gold Coast QLD Australia 2025: What does employment look like for people with disability? - Panel session, Australia's Disability Employment Conference, Mercure Gold Coast Resort Queensland
 
7 Aug 2014: Gold Coast QLD Australia 2025: Balancing Opportunity and Risk: Civil society, disability employment and the NDIS - Panel session, Australia's Disability Employment Conference, Mercure Gold Coast Resort Queensland
 
8 Aug 2014: Brisbane QLD Renaissance – Now or ?? – Continuing the deinstitutionalisation of people with disability. 17th Floor 53 Albert Street, Brisbane, 9.30-3.30pm. Guest speaker is Graeme Innes - former Disability Discrimination Commissioner.
http://www.qai.org.au/
 
12 Aug 2014: New York USA International Youth Day 2014: Mental Health Matters
https://www.eventbrite.com/e/international-youth-day-2014-registration-12048979823
 
12 August 2014: Dubbo NSW Get More Skills – for people with disability and their family members, Western Plains Culture Centre
 
14 August 2014: Wagga Wagga NSW Get More Skills – for people with disability and their family members, Mercure Hotel Wagga Wagga
 
14-15 Aug 2014: Perth WA National Disability Services Western Australia State Conference. Perth Convention and Exhibition Centre
http://www.nds.org.au/events/1391643149
 
15 Aug 2014: Melbourne VIC Best Behaviours Workshop. 485 La Trobe Street, Melbourne
http://www.braininjuryaustralia.org.au/

15 August 2014: Young NSW Get More Skills – for people with disability and their family members, Young Federation Motor Inn
 
16 Aug 2014: Sydney NSW Living A Good Life DVD & Podcast launch. Redfern Town Hall, 73 Pitt Street Redfern 2.30pm – 4pm. Contact Michelle Donelly, michelle.donelly@scu.edu.au  or mobile 0423 986 386
 
18 Aug 2014: Hervey Bay QLD Information session on The Royal Commission into Institutional Responses to Child Sexual Abuse. 10am-11.30am, The Hall, Urangan Community Centre, Elizabeth Street, Urangan, Hervey Bay.
http://www.pwd.org.au/latest-news/pwda-to-provide-information-session-in-hervey-bay-queensland.html
 
18 Aug 2014: Orange NSW Get More Skills – for people with disability and their family members, Orange Ex-Services Club
 
19 Aug 2014: Bathurst NSW Get More Skills – for people with disability and their family members, Bathurst RSL Club
 
20 Aug 2014: Penrith NSW Get More Skills – for people with disability and their family members, Penrith Bowling and Recreation Club
 
20-21 Aug 2014: Sydney NSW Universal Design Conference, Sydney Town Hall, NSW http://www.universaldesignconference.com.au/
 
21 Aug 2014: Illawarra NSW Get More Skills – for people with disability and their family members, Albion Park Neighbourhood Rail Centre, Aboriginal and Torres Strait Islander community
 
22 Aug 2014: Wollongong NSW Get More Skills – for people with disability and their family members, City Beach Function Centre
 
25 Aug 2014: Nowra NSW Get More Skills – for people with disability and their family members, Nowra Library
 
25 Aug 2014: Bega NSW Get More Skills – for people with disability and their family members, Club Bega
 
25-27 Aug 2014: Gold Coast QLD 15th International Mental Health Conference - Mental Health: Innovation I Integration I Early Intervention, QT Hotel, Surfers Paradise.
 
26 Aug 2014: Bateman’s Bay NSW Get More Skills – for people with disability and their family members, Catalina Country Club
 
26 Aug 2014: Woollahra NSW Get More Skills – for people with disability and their family members, Gaden Community Centre and Café, Russian community
 
28 Aug 2014: Clayton VIC Monash University Social Justice Expo, 10am-4pm, Building 10, Campus Centre, Monash University Clayton Campus
 
28-29 Aug 2014: Newcastle NSW Getting the best from the NDIS - Making it work for People with Intellectual Disability. Panthers, Newcastle.
http://www.nswcid.org.au/standard-english/se-pages/future-events.html
 
28-29 Aug 2014: Sydney NSW 9th Australasian Nursing & Allied Health Stroke Conference Risk, Recovery and Reorganisation http://www.smartstrokes.com.au/pages/save-the-date-2014.html
 
30 Aug 2014: Coffs harbour NSW Living Well Expo 10am-3pm
http://midcoastcommunities.org.au/mcc_events/living-well-expo/
 
1-3 Sep 2014: Adelaide SA 7th International Urban Design Conference. InterContinental, Adelaide.
 
4 Sep 2014: Ashfield NSW 2014 Recovery Forum, Whole of Health. 9-5pm Ashfield Town Hall.
http://www.nswcag.org.au/recovery-forum.html
 
12-13 Sep 2014: Nepean NSW Nepean Disability Expo. Penrith Panthers Pavilion. http://disabilityexpo.org.au/
 
16-17 Sep 2014: Ultimo Sydney ACCAN National Conference, Connecting Today’s Consumer, Aerial UTS Function Centre
https://www.regonline.com.au/builder/site/Default.aspx?EventID=1560951
 
19-21 Sept 2014: Melbourne VIC A Weekend Intensive Workshop in Inclusive Dance. http://www.artsaccessaustralia.org/
 
11 Oct 2014: Batemans Bay NSW The Bay Push 2014. Entry forms from the Bay Push website or contact Rob on 0411 285 533
 
13 Oct 2014: Perth WA 'Advocacy in Action' Short Course at Public Health Advocacy Institute of WA (PHAIWA)
 
28-29 Oct 2014: Chatswood NSW Arts Activated Conference, The Concourse Chatswood Sydney
 
30 Oct 2014: Sydney NSW Our Daughters 2014, Aerial UTS Function Centre, University of Technology (UTS) Sydney
http://www.regodirect.com.au/ourdaughtersconference
 
23-24 Mar 2015: Melbourne VIC Third Sector Expo Flemington Racecourse, Melbourne. http://thirdsectorevents.com.au/
 
July 2015: Hobart TAS Beyond our Boundaries. Expressions of interest are now invited http://www.beyondourboundaries.org/#!about/c10fk
 
 

 
About PWDA
 
People with Disability Australia Incorporated (PWDA) is a national disability rights and advocacy organisation. Our membership is made up of people with disability and organisations committed to the disability rights movement.

PWDA was founded in 1981, the International Year of Disabled People, to provide people with disability with a voice of our own. We have a cross-disability focus and represent the interests of people with all kinds of disability.

As a non-profit, non-government organisation we depend on public donations, bequests and fundraising activities to maintain our commitment to improving the lives of people with disability. As a deductible gift recipient, all donations of $2 or more are fully tax deductible. Your tax deductible donations support the work of PWDA. If you are able to support us, please visit pwd.org.au/donations.html
 
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